| | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | I lovvvvvvvve that post-cancer, we can chat fitness w/70+year-old gym fiends and multi-recurrence survivors!!!
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | I agree with you completely there Bart. Neither can I do what I used to nor really want, maybe I would lol. Fyi. I mention infections often, cause that's one the things that almost did me in. Food too, I don't keep leftovers more than two days or food left out too long. Maybe we can exchange routines one day when I start again, and lile the three days too. Keep on pumping.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | OK back to Rich. As we all say everyone can be different so you do what you think is best for you and how you feel. For me the combo of radiation, chemo, fear, anxiety, not having the benefit of this site until post Tx, the fact that I was not even tested for HPV until post Tx and the fact that HPV was virtually unknown when I was treated all led me to kinda shut down and wait my Tx out. For whatever reason or all those reasons I couldn't have exercised even if I wanted to from my 2nd chemo thru the first few months Post Tx.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2013 Posts: 28 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2013 Posts: 28 | [quote=davidcpa]OK back to Rich. As we all say everyone can be different so you do what you think is best for you and how you feel. For me the combo of radiation, chemo, fear, anxiety, not having the benefit of this site until post Tx, the fact that I was not even tested for HPV until post Tx and the fact that HPV was virtually unknown when I was treated all led me to kinda shut down and wait my Tx out. For whatever reason or all those reasons I couldn't have exercised even if I wanted to from my 2nd chemo thru the first few months Post Tx. [/quote] Thanks David, It sounds like I have been fortunate to be diagnosed in a time where there is better understanding of how to identify HPV as the cause and then treat is specifically. That seems to be a lot of the reason why they now want to use just radiation and not chemo also for which I feel fortunate.
47, Non-smoker, moderate drinker
7/13 Found a lump on my neck
8/08/13 Dx HPV 16+ SCC right tonsil
8/19/13 Biopsy and neck dissection, 38 lymph nodes removed 2+ for cancer
9/23/13 Start 33 radiation treatments & 4 x Carboplatin/Taxol, 3 x Taxol only
11/07/13 Last radiation treatment
01/03/14 Post treatment CT scan looks good
| | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | Good luck to us all, ladies and gents! And my thanks to ChristineB and Davidcpa and all the other Admins, mods and staff who make this wonderful forum a possibility!
A positive attitude (as shown by richl796 and everyone else here) is a great asset in fighting and conquering this insidious disease. Stress is a major enemy, and a positive attitude perhaps the best weapon of all in the battle.
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
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