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#16976 02-01-2005 02:03 AM | Joined: Jan 2005 Posts: 17 Member | OP  Member
Joined: Jan 2005 Posts: 17 | that's fairly conlusive then! Thanks for all your help. | | |
#16977 02-01-2005 10:20 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Chris,
Welcome to the neighborhood! I, too, has Cisplatin and I wouldn't wish that on my worst enemy, UNLESS, he is going through radiation for SCC! You need every possible thing in your favor to beat this horrible beast. I HAD hep C, too, and just finished the Interferon/Ribavirin treatment when the cancer was diangosed. I have been undetectable since May 2002 except on my last blood draw it appears to have resurfaced. The doctor has said either I am the first known case to reappear after being undetectable for almost 3 years or something interfered with the test. I guess I will know in the next couple of weeks. I really expected the stress of chemo and radiation to trigger a relapse but to my surprise it didn't (or hasn't until they can prove otherwise).
Best wishes for you and your upcoming treatment plan. It may not be easy but it has been done by many before you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#16978 02-02-2005 07:52 PM | Joined: Jan 2005 Posts: 191 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 191 | I'm currently on the Cisplatin treatment. For me, I've only had two out of the seven treatments, which is a once a week thing for me. It's not a curative thing, but sort of a cancer wash that helps the radiation therapy attack the cancer cells. Or at least that's the way it's been explained to me. So I'm getting like a 20% dose of the stuff once a week.
As for how I'm taking it.... I'm usually in the chemo infusion ward for four to five hours prior to radiation. Sometimes I mess around on the computer, my laptop. Both times so far, I just curl up in the chair and take a nap.
Only bad side effect has been days after chemo... three days, when I had a nausea episode on the weekend. From now on I just make sure to take my compazine tablets so I don't tempt the fates.
Good luck to you.
Jen | | |
#16979 02-03-2005 01:41 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi Chris, I too had Cisplatin when I had my
cancer. Please go for it and do everything the
Docs say. I'm glad I did even if I don't have
teeth on the bottom anymore. At least I'm still
here since 1990. Good Luck.
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
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