| | Joined: Aug 2013 Posts: 1 Member | OP  Member
Joined: Aug 2013 Posts: 1 | good morning guys,
im norbert, im a dentist form the philippines.
i have a bitting trauma history on the left part of my tongue 4 months ago. it healed well.
last two months ago, ive experienced persistent numbness on the lateral left of my tongue, area of previous bitting trauma.
and anterior to the bitting trauma a lump formed.
the lump subsided. but at the area of the previous lump it developed persistent pain that comes and goes.
i have left and right mandubular lymphadenopathy that i discovered 3 weeks ago and it is confirmed by a recent neck sonogram.
lymphnodes more enlarged and palpable on the left area.
the lymphnodes have intact hila and the radiologist concluded that it looks benign and indicative of cervical lymphadenopathy.
ct scan of the oral cavity and oropharynx are inconclusive.
i am scheduled for a mri of the tongue this week.
my primary doctor (ent-head and neck surgery) is not that concerned on my lymphadenopathy.
im getting frustrated because i still dont have a definitive diagnosis and 2 months have already passed.
my doctor cannot biopsy my tongue because it doesnt show any lesion, he is waiting for the mri result before procceding for the biopsy.
please help guys. need your comment, personal experience and suggestions.
thanks in advance,
Norbert
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Welcome to OCF Norbert. It seems you are doing the right things and getting the right tests and such. I can't offer much aid to getting you a faster diagnosis where you are but can offer to keep the pressure on like you are doing now. It surely helps that you have a science background to communicate more effectively.
Best to you, don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi there. Post scan there should be a definitive location he can biopsy. Best of luck
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Norbert, welcome to OCF! I understand how hard waiting for tests and a definitive diagnosis can be. It certainly sounds like you are going about things in the right manner. Im not familiar with how the medical world works in countries besides the US (also vaguely familiar with Canada). Since Im not aware of how things work in your country, I can suggest going to the best major cancer center you are able to go to. The big cancer centers should have sate of the art equipment and the brightest doctors who treat many similar cases.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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