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#16901 01-18-2005 10:40 AM
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Being a Christian for quite some I too have to agree with Brian. We have to do ALL that we can do first before we ask God to do what He can do.
And that covers a lot of bases - stopping the addictive behaviour (if that was involved), seeking the best doctors and institutions, getting educated and being a self advocate for the best treatment choices.

I prayed a lot and still do but that didn't mean not to go the distance to find every available weapon in the fight. God works through people and that includes doctors and institutions.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#16902 01-18-2005 01:38 PM
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I am not religious but has no offence against any religion. I agree that Christians are very supportive and when I was in the darkest part of the tunnel, my Christian friends prayed a lot for me and when I started to recover, they claimed that I could be cured because of their constant prayers. I wonder if I didn't make any effort and just sat back and waited for God's help, would the outcome be the same? Would I still be alive if I weren't proactive enough in grasping the essential weapons to fight the battle? Of course many patients who were fervent in their religion and had a courageous fighting spirit still lost their battle. I can only say that since we are human, there are many things beyond our power and control to manage.


Karen.


Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
#16903 01-18-2005 05:05 PM
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The posting regarding there is no smoking gun related to spit tobacco was deleted by me, and that is why you will not find it in that thread any longer. The information was just completely incorrect. There is a direct link between oral cancer and spit tobacco and just because this posters relatives were able to live to ripe old ages and still use tobacco, doesn't mean that that applies to everyone. We all know that different genetic make ups make each one of us susceptible or not to different diseases, be they cancer, heart, or others. George Burns smoked cigars into his 80's (quit for the last 15 years of his life and never got cancer. ) But he was an anomaly not the normal person in the tobacco experience. I can't spend my days arguing with a particular poster about the information or some superficial point that thousands of peer reviewed published articles corroborate. So at times it is just easier to remove the incorrect information. Occasionally I edit a post and that leaves behind an included trail which states that OCF edited the post for content. But there was nothing in the post to salvage, it was total bunk. Sorry to be so blunt, but a spade is a spade. If you don't have the right information from a reliable source, you can only speak from your personal experience and that may be different than others experiences. That is ok to post, but to blatantly say there is no connection (


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#16904 01-18-2005 05:33 PM
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Brian,

This is not a hijack, I'm looking a few posts up from yours. This seems as good a place as any to add my thoughts on the religion issue as it relates to the board.

All,

Oh boy, here I go into the abyss. I'm going to jump in with my thoughts on the religious overtone that seems to have overtaken the site. I accept peoples spirituality for what it is. I was raised as, and continue to be, a christian. I am not deeply religious and, I'll admit, praying is usually an act of desperation on my part. I understand the comfort people derive from prayer and fully appreciate that countless people include me in theirs. I just think the place, at first glance, is starting to appear a bit Christian based. We are not talking religious, we are talking strictly Christian. I know I am not the only one that feels this way and I have exchanged emails on this matter with several members. The old standard was one of common sense. The tone of the initial post would dictate the response. Brian probably got tired of writing that. Anyway, this is not the only cancer board I am involved with but it is the one I hold closest to my heart. I have been here a long time (thank God) and many of you are like family to me. Initially I was drawn to this site by the seemingly endless resources. What a wealth of information and knowledge! I stay to offer my insights and, ass I said, we are a family. I worry that we occasionally drift too far from the reasons most of us first came here, and that the Christian spin could inadvertently send I newcomer away. Religion has a place here, but it should not permeate every post. Just a thought.

On a lighter note, I am into my 3rd of 6 weeks of radiation for NSCLC and doing great. Tomorrow I go to Yale for my 2 year 4 month check-up.

Glenn

#16905 01-18-2005 06:02 PM
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Glenn - good luck on your check up, they always make me tense and nervous before each one, and try as I may, I never can seem to control that. The nature of survivorship I suppose.

As to the religion issue I tend to agree with you and I do not wear my religious beliefs on my sleeve. To me religion is a private matter, and my spirituality is not something that I share with others openly. The general rule about religion on the boards has been stated when you sign up: http://www.oralcancerfoundation.org/cgi-bin/ultimatebb.cgi?/ubb/agree_review.html

In it nutshell it says: Read the original post. If that person expressed something like pray for me etc., then a reply that also includes reference to prayer is more than appropriate. If that first poster does not make a reference to religion, the following posts should refrain from it as well. It's a simple thing that will keep the board balanced and not exclude any ideas. Strong religious beliefs have helped many a person through difficult times, and cancer certainly qualifies as one. But as we post answers and inspiration to others here, we must always remember that OUR religion may not be THEIR religion, or they may not be religious at all. Clearly, there are no absolutes here. The rule of thumb is not to make assumptions about other's belief systems, and offer the most valuable thing that you have


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#16906 01-18-2005 06:24 PM
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"I stay to offer my insights and, ass I said, we are a family."

Typo or Devine providence? You decide. wink

Seriously folks, I have to agree with Glenn's observation here. I am speaking from a Christian upbringing and as an active member of my church. Faith is and will be an important part of many people dealing with a potentially fatal disease. That does not mean, in my opinion, that we should waive our particular faith in front of others. It is outside the purpose of this support forum to attempt to influence anyone


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
#16907 01-18-2005 07:05 PM
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I completely agree (especially Glenn {my alter ego ha ha}) with all of you. Sometimes the religious element does get a little over the top here and like Mark, I too am active in my church and am involved in several different ministries. I think that Brian's approach to it is very fair and balanced. We do need to approach this in a manner that reaches the largest common denominator. AA has been successful at this for over 60 years now. Religion can really put some people off -some, understandably, even blame God for this. We all need to be sensitive to this.

We all owe Scott an apology for hijacking his thread.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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