| Joined: Jul 2013 Posts: 3 Member | OP Member Joined: Jul 2013 Posts: 3 | My husband had a partial glossectomy that turned out to be 1/3 of his tongue (this large of a portion was not planned - plans changed in surgery as active pathology was taking place). Radical neck dissection, 23 nodes out. One or two was suspect. Got good news 7/26 no cancer in nodes. Tongue margins "were close but we think we got it all." Dr. on vacation this week. Post op next Thurs. This all took place from week of 7/4 to now (sore, biopsies, surgery). Lightning speed. I am on needles and pins...if he was told no cancer in nodes and they believe they got it all in the tongue, is there a chance of no need for radiation or chemo? We have great insurance...I am so new to this...can you ask for occasional PET scans instead?
Last edited by apappala; 07-31-2013 10:46 PM.
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Hi Apappala,
As I said in your other post, you have an awful lot going on right now. Sorry you find yourself here but this is a great site for information and support.
I wouldn't be surprised to hear that radiation and chemo will be recommended especially in light of the statement "were close but we think we got it all". I had surgery and my ENT felt that he got it all. Still, radiation and chemo was recommended.
As you begin to gather more information, please construct a signature. It gives a timeline and information that helps us understand more of what's taking place.
Positive thoughts and prayers.
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | No one here can answer that question but some do get away with only surgery saving the radiation, etc just in case of a recurrence. Problem with this cancer is regardless of how knowledgeable your team is there are just no guarantees whichever way is chosen. It's something we all learn to live with and only time overcomes that unnerving uncertainty.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jun 2013 Posts: 262 | Hi Apappala, and welcome -- I'm so sorry you and your husband are up against this. Some people find it invaluable to seek a 2nd opinion, so you can have the benefit of weighing two sets of medical opinions on your best course of action.
I'm new to all this too, but I think PET scans can only detect cancer that's already established. Radiation tries to eradicate cellular traces of cancer before they gain a toehold.
There are definitely people who are treated with surgery only, you can find a few here by looking at folks' signature lines. I would guess that many more have moved on and don't participate regularly in the forum, simply because they have fewer treatment issues and side effects to deal with.
I think it's fantastic that your husband has been treated so promptly and before lymph node spread, that's very much in your favor.
53 T3N2aM0 HPV+ 5/26/13 discovered painless superball-sized lymph node in neck 6/26/13 DX SCC R palatine tonsil 7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes 9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses 10/16/13 Treatment ends Dec 13 Ulcer appears at surgery site Jan 17 Biopsy -- no cancer! Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | It depends if further treatment will be necessary. What do the doctors say? What is the T stage? That matters, as does clear margins, extracapsular spread, other adverse featurees, like perineural, lymphovascular invasion, close margins. I had close margins last May from a neck dissection, with adverse features, and needed chemo and radiation, minimum, and less than a month, cancer went to the elliptical layer of the skin. I wound up having a resection with a flap, high dose IORT radiation, and chemoradiation. They are not going to substitute PET scans for treatment of cancer, If it's needed. Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2013 Posts: 7 "OCF across the pond" Member | "OCF across the pond" Member Joined: Jun 2013 Posts: 7 | Hi, i had the same as your husband 2 years ago. no radiation. It was decided.to keep that back just in case.
Scc in situ right side of tongue. Partial glossectomy Aug 2011, clear margins. June 2013 white patch noticed on opposite side tongue. July 2013 biopsy of white patch completed - mild to moderate dysplasia September 2013 Laser excison of dysplsia. Mild dysplsia with clear margins | | |
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