| | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi - I'm sure I've asked this before but where is your father being seen?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Feb 2013 Posts: 4 "OCF Canuck" Member | | OP "OCF Canuck" Member
Joined: Feb 2013 Posts: 4 | My father is being seen at Sunnybrook but now that he is in Palliative care he is having a doctoring coming to the house.
His breathing has gotten much heavier and while he is not struggling for air according to him, it sure sounds like it. He can't do much at all other than watch TV and sleep and his speech is much worse. He has what appears like a blister on his leg, almost like a burn mark. Is this normal?
He has made it clear that he does not want a treach(sp) put in if his breathing gets worse. Is there anything that can make him more confortable?
thank you all again | | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | You may want to seek out hospice services locally. They can do an initial consult and give you advice on the various options for making him feel most comfortable. best to you, don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | Just want to say I'm sorry your family is facing this. I hope you find peace and comfort.
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Sorry for you and your family, hang tuff and best regaurds!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Re the leg... I would have a dr. Look at it.if he's not moving it could be a pressure sore. These can lead to infection. With regards to the breathing : I'm Canadian, live in Toronto. was your dad ever seen at PMH? He should have been, sometimes you have to push for what you are entitled to. I don't know your dads history but PMH may have services offered that you can't get at sunnybrook. They also have cancer related palliative services that are unmatched - seriously - my good friend ended up there after her local hospital told her to go home and die - not only did she live another year, the extra medical stuff she had to have done (she needed to have her abdomen drained bi weekly..l etc..) was done much more efficiently and less painfully than where she had been treated, they also had a clinical trial she participated in. That said, if its not a change you are ale to make your dad is entitled to up to 7 hours of in home nursing care daily I believe : ask for a referral to the CCaC - they will monitor his pain and do any other medical stuff that needs doing, including bathing, meds, and dressings. Hugs, and I'm sorry you are all facing this. 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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