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[quote=bjlral]

Take some time, to read and be encouraged and glean hope.

[/quote]

Love it.

bjlral,

OCF University is fitting. With the education that I've received from Brian, Charm (RIP), Christine, David, etc...I've been asked to teach at one of the top 5 dental schools in the country, and will be added to their curriculum in the next year.

That's a testament to Brian's commitment to peer reviewed science and getting the latest information out there with the OCF website, the RSS Newsfeed, and these forums.

The only thing I can take credit for really is an incredible memory and amazing communication skills...because I'm humble like that. wink

Connie, we have several OCF members in your state and a great relationship with MDAAC in Houston, the best advice when dealing with cancer, is to get the absolute best medical advice available to you, the rest is up to how your body responds to treatment.

Keep your chin up, and plug in for support often...and keep eating and hydrating!!!

E

Last edited by EricS; 07-27-2013 03:24 PM. Reason: always spelling

Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Hi Connie,
Just going to add my hello and welcome you to the gang. It stinks that you have to be here, but we've all been where you are so completely understand the deer in the headlights look right now. Once you have a diagnosis and a treatment plan it really does get easier because you are fighting instead of waiting.
Stay with us.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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Connie, sorry you have to join our family, but welcome! There is a lot of good advice for you already as I can see, so I would just say that it helps sometimes when the going gets rough, to learn to take things one day at a time.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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Hi Connie, Welcome!

My cancer treatment center in Pensacola is affiliated with MD Anderson, and I can add my assurances that you are in good hands with them!

I'd like to reinforce what others have said, read the forums, starting with this one. Why, because each intro thread introduces new elements and elicits new suggestions from members who've BTDT and have a bunch of nifty shirts to prove it!

Be pro-active, and no NOT assume that you don't need to be involved. Even the best medico's are still human and forget minor details from time to time, such as scheduling events. Things fall through cracks, be on top of things and speak up if you aren't getting a clear picture of who, what, when, where and how regarding any part of your treatment/condition.

Good luck, and please keep us informed as to your dx!


My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!
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Hi Connie, sorry you're facing this but welcome to the best bunch of folks you could have on your side!

To all the great advice so far, I'd add try to get copies of everything -- pathology reports, operative reports, even bloodwork. The detailed info will help you sort out questions that come up as you go forward on this journey.

Hugs,

Mamacita


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
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Thank you I enjoy reading what others post. Got my mask started today and get pet scan tomorrow.


Connie M.
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Hi Connie,

I see you've gotten a lot of great advice and encouragement already so I'll just say welcome, add my encouragement and tell you to hang on for the ride. It's a rough one but you'll make it through.

You didn't mention where you're seeking care but MD Anderson in Houston is the #1 rated CCC in the country. As others have mentioned being treated at or getting a 2nd opinion at a CCC is advisable.

Good luck, positive thoughts and prayers

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
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Posts: 8,311
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Connie,

One other thing that would help all of us that want to respond to your future posts and that is to add a Signature Line like mine and others. Go to My Stuff and Edit Profile.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Connie, I sent you a private message (PM) a few days ago. Take a look towards to top middle of the page, next to the My Stuff tab. You should see a tiny envelope blinking. Click on that to get your PM. Please take a few minutes to review it. There is a link which gives detailed instructions on how to add a signature. It really is very important to have a signature, it helps us to help you.

Thanks!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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