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Joined: Sep 2012
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Saffy Offline OP
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Hi all grin! I finished my treatment in September last year -30 radiation to parotid gland. I am healing overall but find I am very emotionally detached from friends and can rather do without. Anyone experience the same??

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Many who have gone thru OC and its treatments end up becoming depressed. Maybe seeking a therapist to talk to would help get you back to your regular lifestyle.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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I can do without most people with or without cancer most my life lol. Is this feeling different than pre treatment? Some feel a loss after treatment, get depressed, as Christine mentioned, for a number if reasons, one is all of a sudden your support team, dr visits, tests, and routine suddenly ceases, and feel something is missing. Head and neck cancer also has a high rate of depression compared to other cancers. Maybe join a support group, see a counselor, have your blood levels checked for any deficiency, TSH, Vit D, Testosterone, hemoglobin, A1C, glucose for diabetes, which can effect quality of life, mood, health.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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"OCF Canuck"
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It could be depression... I could be fear.... (of the unknown - will I die? Why bother?) It could also be you've outgrown them... I find myself more social now, but I do find that some stuff I thought important before is not so to me now. So maybe they are somewhat frivolous? It could be you are angry or resentful towards them...? They are moving on with their lives - didn't have to suffer as you did. How can they have fun after all I've been through? Why me?

This disease changes your mind set.

Regardless detachment in some way is an insulator. If you are detached you cannot get hurt. Or maybe you've lost your joy (depression) get help - join a support group - a face to face one - or see a therapist to talk things out.

best of luck.



Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Posts: 177
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Yes, I kind of had that experiance also. I think some of it was depression, but I just felt and still do feel like I don't quite fit in society like I once did. The feeling isn't as strong anymore and I am grateful for the family and friends that have helped me through all this, but I do sometimes feel like I am standing on the sidlines looking in on everyone else living their lives. It is not as negative a feeling that it once was and I am not depressed or unhappy. My life is very full and I wouldn't change a thing, if fact I think things are better than they have ever been, I just am where I am.


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

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I experienced some of the same feelings. I'm wondering if it's some kind of normal state. The posters above me have given you some great suggestions. Maybe it will just run its course. Please keep us posted. Because we're your friends too!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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Posts: 8,311
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Most cancer survivors experience some form of depression from very mild to that requiring professional intervention so please consult a professional experienced in post cancer Tx depression.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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"OCF Kiwi Down Under"
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Hi Saffy, I totally get it. I also feel like I am standing on the sidelines. Other people have absolutely no concept of what you have been through. How can they? Of course their lives continue on rentlessly. Our lives? in some ways we do just stand still. An endless round of Doctors/hospital appointments, scans etc. And then the waiting. For good results, health improvements , always coupled with the fear of more bad news. It is difficult to move our lives onwards. It is difficult to see our friends lives move on with happiness and no disasters. My Sister constantly posts how wonderful and glorious life is. Well, I think, "Lucky you". What about me?
Yes, I get it. I also think " the tincture of Time" helps.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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I couldn't have said it better, Tammy. I hate all that rah rah, life is good stuff. Let me be happy by being unhappy sometimes lol. That's how we get by here anyway here in nyc . You hate it to love it smile


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Nov 2006
Posts: 2,671
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Joined: Nov 2006
Posts: 2,671
Here's just my two cents worth: Anytime there is a change in life, even if it's a good change, stress can accompany it, because of having to adjust to a new way of dealing with whatever comes your way. Often it causes depression - which is temporary, but it doesn't feel temporary when you are in it. I call it the "what now" feeling and caregivers get it too. When my son finished treatment, I felt at a loss because of the change - there was no longer the familiar routine of driving to treatment, having lots of doctors, nurses involved that we could depend on. It was a definite loss and stressful.

As for the rah-rah attitude, I have to agree with PaulB - it doesn't help to try to get someone to "cheer up" all at once. On a depression scale of 1-10, you cannot go from a 1 to a 10. It has to be done slowly and maybe point out some small encouraging progress. When my son was depressed, I would ask him where he was on the depression scale and if he said "4" I would ask him if he could work on making it to a 5 or a 6. If he said 4.5 that was progress.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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