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| | Joined: Jun 2013 Posts: 32 Likes: 1 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jun 2013 Posts: 32 Likes: 1 | Hi Meli,
So sorry to hear of your experience. Sounds just awful :-(
I am fortunate to be much better and am healing well now, just a few days later. The tongue does hv remarkable ability to heal quickly. But your issues I know r different having had ND also, and Trach. Pls hang in there; u sound very strong! You will get through this. Pls keep in touch w update and I will as well.
Best
Laurie
Laurie
42 yo
Pediatrician
No smoke, social drink, HPV neg
May 2013 - SCC Right lateral oral tongue - stage 1 (T1N0M0)
Partial hemiglossectomy and sentinel node bx NEG
NED 5/29/13
3/2014 - Cancer back (never gone) in one right sided cervical node
Modified neck dissection 3/2014, N1 with microscopic ECE,39 nodes neg
30 Rads and 2 cisplatin done June 13!
PET in 3-4 months but no clinical cancer and I'll take it!
| | | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Sep 2012 Posts: 381 | Laurie,
On your speech, it will improve a lot with speech therapy. I lost 50%+ of mine, and had a forearm graft. People never know when talking to me now and even my family can only hear slight distortions. I tell people I sounded like Elmer Fudd with a lisp for a while...
I put in the work and the time, and it paid off, and I'm sure it will for you as well, as it already sounds like you are well on your way.
Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
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