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Now this is my kinda thread: beer talk, lol...if I had a dollar for every IPA I ever tried...love the stuff, or rather I did: taste buds still awol or just wonky.

Oh no, imagine if now I only liked another type of ale post treatment? Yikes, just think of all the research I'd need to find the perfect pint! Wouldn't that be awful? hehehe

To answer the Jim Carey question, oh yeah. At home, in the car, in the shower, at the dentist...


42yr male, Dx jan2013 SCC left tongue stage 3, half glossectomy w/thigh tissue flap and left neck dissection jan/feb, 35 IMRT and 3 cisplatin apr/may, PEG in late March/out early June, pneumonia twice since tx began. No tobacco, HPV-. Now have painful Lymphedema in face/neck...keeping my chins up!
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Look forward to your beer research. I am thouroghly enjoying mine! Sally


Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
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I celebrate both the day I was Dx'ed and the day I finished that horrid Tx. Why not, I deserve two days!!!

I also loved beer as opposed to "hard" liquor pre Dx and most nights I have my favorite beer (one) pre dinner. Ice House.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Congratulations on the 6 month mark!

A non medicated way to help with nasal congestion is the use of Breathe Rights. They can take some getting used to but they enabled Eric to breathe with his mouth closed there fore helping a mite with the dry mouth.

Good luck...and cheers!


Kat fiance/CG to:
Eric: age 57
DX 10/19/12, HPV16+ SCC stage IV lft tonsil, BOT
nonsmoker,casual drinker
TX 11/5/12 Cistplastin wkly x 7, IMRT x 35
PEG placed 11/9/12
ALL CLEAR PET SCAN - 4/16/13
PEG removed - 4/29/2013
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Last weekend I able to sneak away to fine local establishment and watch my favorite local Reggae band. The bar had an IPA on tap going under the brand Strong. After ordering one, I can report good news, some of my taste buds have returned and I can say definitively, that IPA taste as bad after chemo/radiation as it did before chemo/radiation.

I sorry but, just because some drunken Brits found that extra hops prevented beer from becoming rancid when held in a ship hull for weeks at sweltering hot temperatures, does not mean this swill is at all tolerable or enjoyable. I can honestly say when given a choice between any IPA and the locally produced beer market under the name King Starr made in Zhengzhou China made from, who knows what, and served at Aloft hotel barbeque, I would order King Starr. And I will next week.

Also, my TMJ was not great before the �fun started�, it certainly is not any better now. Has anyone found improvement after seeking professional help? Also what was it that actually helped?


Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
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Make sure the TMJ is not due to dental issue - if you are drinking beer you could probably manage a (gentle) dental cleaning.

Heinen's has GL Smokey Porter on tap - I picked up a growler of it last week and am really enjoying it.

Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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I had TMJ before treatment, my jaw would often crack when opening my mouth, had tinitus too, still do, but never diagnosed nor seeked treatmrnt then or now. Have you been diagnosed with it, could be something else as Maria suggested, trismus too. Maybe Accupressure may help if it is, PT, massage, acupuncture?

I tried many beers in my past life, got tired of the flavored ones, and like a good lager beer mostly, American, German, Chinese, Thai, Mexican, polish, Korean, Russian. I'll drink anything I guess lol. Although, Belgium ones are good, like lambic, almost like champagne, but not an all nighter. Samuel Adams makes a few special brews.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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I was at the dentist just last month. I am currently seeing him every three months. Teeth are in good shape, no issues. I don't have a clicking problem in my TMJ. Its a muscle stretching pain, and it is on both sides, but more on cancer side. I have the therabite system. It stretch it out very well, but boy does it hurt. I stopped a week ago to give it a break. I have a call in to the pain management clinic at the hospitol. I will let you know how it pans out.



Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
saxicola #165804 06-01-2013 05:45 AM
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Hi Sally, just noticed u r a fellow Scot! I left Edinburgh in 98 to travel and met the wife in NE Ohio thereafter...been here ever since! My oh my do I miss the patter of the pubs, nevermind a Deuchars or Caley 80. Hope u r well and those new Trams r finally running lol


42yr male, Dx jan2013 SCC left tongue stage 3, half glossectomy w/thigh tissue flap and left neck dissection jan/feb, 35 IMRT and 3 cisplatin apr/may, PEG in late March/out early June, pneumonia twice since tx began. No tobacco, HPV-. Now have painful Lymphedema in face/neck...keeping my chins up!
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Hi hockey dad, my neck and face was so sore after treatment. I found great relief from a head and neck physical therapist. She helped with the lymph edema and the stiffness in my neck.

Good luck to you and I hope you have more good days than bad.
Allyson smile


8/20/04 Dx'd w/ SCC - Stage II-III L BOT. 2 surgeries. No clear margins. 33 IMRT, chemo. Clear PET
10/26/12 Dx'd 2-3 cm SCC buccal lesion. Non-Smoker, Non-Drinker, Healthy lifestyle.
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