| Joined: Feb 2013 Posts: 78 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2013 Posts: 78 | I wanted to see what dentists have prescribed to others for their teeth. I've done some digging and it seems most dentists have prescribed fluoride tray use every day but a good amount of previous posts did not say for how long each day.
My dentist gave my fluoride trays and told me to put them in 1x per week for 30 minutes and then no water/food for 30 additional minutes. She gave me Oxyfresh sodium fluoride 0.22% to use. I asked her about using it every day and she said I have good teeth with no issues and she thinks it is overkill, but if I wanted to I could do it daily.
I wanted to see what others do and if potentially this is a sign my current dentist may not be the best person to manage my dental care post radiation.
Thanks
Andrew age 25
early 10/12 - enlarged lymph node area 01/13 SCC of L tonsil, L BOT, 2 L lymph nodes stage IVa, T2N2bM0, HPV+
2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT 4/13 TX finished 7/13 PET/CT - NED!
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | At our hospital, the dental oncologists recommend five minutes daily followed by one hour of not eating and drinking. It will be for life.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Jan 2013 Posts: 80 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jan 2013 Posts: 80 | Hi Andrew,
Many of us, including myself, have been told to use them daily for life for at least 5 minutes though there are some variations for others. I do mine for 7-10 minutes each night before I go to bed.
There are a few other threads on the forums on this topic, so you could search 'flouride' to see previous activity.
Regards, Nancy
Nancy Age 56 at diagnosis Neck Lymph node removed 11/2012 Tonsillectomy perfomed 12/2012 - identified as primary SCC Left Tonsil with Left Node involvement, DX 12/2012 RX started 1/29/2013, finished 3/23/2013; Daily IMRT (35 Sessions) Weekly Taxol/Carboplatin (6 weeks) PEG placed after week 4 (3/1/2013) PEG removed 6 1/2 months later (8/12/2013) | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I started using 1.1% Sodium Fluoride one month before radiation began and continued for 5 years post Tx. I had near perfect teeth to begin with and I still do today some 7 years post Tx. My dentist told me to apply a thin strip in each tray, upper & lower and put them in for 30 mins each night right before I went to bed. I was able to do probably 95% of the Tx time and afterwards. Some nights I couldn't because of the pain and some nights I couldn't find them because of my cats but that's another story!
I found Cypress at my pharm which is/was substantially cheaper than most of the other products I found.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | HI... ditto what everyone else here has said. They should be used daily, for 5 minutes followed by 1 hour of no food or drink.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Hi Andrew,
My dentist recommended I use a kid's fluoride rinse (Listerine) as opposed to trays. I use it twice a day (am and pm) after brushing. It has a pleasant taste and doesn't hurt my mouth.
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: May 2009 Posts: 132 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2009 Posts: 132 | Hi, Andrew -
My dentist/prosthodontist said to leave them in for 10 minutes (at night, after brushing and flossing) and then not to eat or drink at all after that. He knows some dentists say it's okay to drink water an hour after, but my guy prefers that I don't.
You've gotten a lot of good advice from others here, too. It sounds like everybody does it a little bit differently!
Chrissy
Stage 2 SCC upper right palate Hemi-palatectomy and maxillectomy 5/28/09 Six teeth gone IMRT x30 starts July 13. Completed 8/26/09 Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
| | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | My ENT and MO have me use them nightly for at least five minutes each night for life, I use 1.1% flouride!!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: Feb 2013 Posts: 78 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2013 Posts: 78 | Thanks for all the replies. I'll check locally for some 1.1% fluoride and switch to daily use, seems like it cant hurt.
Andrew age 25
early 10/12 - enlarged lymph node area 01/13 SCC of L tonsil, L BOT, 2 L lymph nodes stage IVa, T2N2bM0, HPV+
2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT 4/13 TX finished 7/13 PET/CT - NED!
| | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | My dentist and hygienist told me the same thing. Five minutes everyday with nothing to eat or drink at least a half hour after. Also, I will be doing this for life.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | I was told 4 minutes with the trays followed by nothing for half an hour. I do it just before bed so I'm not tempted to drink anything. But some months ago my dentist suggested that I might not need to do it every night but rather to brush with the stuff (I use Prevident) and do the trays once or twice a week. But my oncologist seemed to think I should keep up the trays. I'm following her advice, though once a week or so I might skip the trays and just brush with it.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Apr 2012 Posts: 111 "OCF across the pond" Senior Member (100+ posts) | "OCF across the pond" Senior Member (100+ posts) Joined: Apr 2012 Posts: 111 | Just to be different, I can only imagine what flouride trays are like. No mention of them for me here in the UK. But right from the start I was prescribed Duraphat 2800ppm Flouride toothpaste (0.619% Sodium flouride) and told to use it 2-3 times a day with no water rinse after, or food or water for half an hour. The main emphasis was on good dental hygiene particularly flossing before bed. Also it was stressed to avoid sugary or acidic drinks (ie fruit juice, even lemon in water is a very bad for teeth)unless eating at the same time. Milk is OK.
As I am very worried about the future possibility of osteoradionecrosis (ORN)I am very careful about what I drink. I clean my teeth after each meal and use a sodium bicarb mouth rinse frequently and when I remeber I use a saliva replacement get to before eating to give my teeth a bit more protection.
Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol. 10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12. 12/07/11 RIG. RIG removed 05/05/12. 4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | David,
I started with Prevident at the time costing like $20 a tube but I found Cypress for appx $8 a tube so being a faithful CPA I switched quickly with my dentist's permission of course.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | Thanks, David. You'd mentioned Cypress before and I believe I looked into it. Must not have been an option for some reason or I certainly would have switched. Anywho I'll ask my dental office again next time I'm there. Believe I pay them 11 bucks for Prevident, but you don't need to be a CPA to do your math on the other product.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | [quote=davidcpa]David,
I found Cypress for appx $8 a tube so being a faithful CPA I switched quickly with my dentist's permission of course. [/quote]Is this found at the national drug chains or some more specialist pharmacies?
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Yes I got my prescription filled at Walgreens for Cypress.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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