#16460 09-25-2004 02:21 AM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | Hey everybody, our new member Jim posted this at the end of another thread, and I didn't want us to miss him, so I copied and pasted to start a new topic. Lisa in Ks
Member
Member # 1608
posted September 25, 2004 12:59 AM
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Hello, My name is Jim and I am waiting for results to a biopsy done on 9/21. My dentist noticed an abnormal area on my gums and set up an appointment with an oral surgeon. He took a piece and sent it out for eval. I'll know by 10/5. GOD I am scared.
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Posts: 1 | From: NJ | Registered: Sep 2004 | IP: Logged
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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#16461 09-25-2004 02:31 AM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | Jim,
Hi- I copied and pasted your post to the introduction site as our forum moderator and OCF founder, Brian Hill, is in Las Vegas at the first OCF meeting for our members. He would have done this much more skillfully, but I didn't want your post overlooked. You will get answers on both threads, I am sure!
It is so tough waiting on results. We have been there and understand. I have had a lot of people contact me when they have the same thing happen, dentist noticed something and tests it. Not one of them have turned out to be cancer, but it was a wake up call for all of them to be more concious of their health. All were smokers, chewers, heavy drinkers, etc.
We like to say around here that "It ain't cancer till they say it's cancer." I am praying for patience for you and that your results are negative.
Sincerely,
Lisa in Ks
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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#16462 09-25-2004 07:02 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Jim, Welcome to the site. Sorry you were compelled to find us by a possible issue, but welcome. We will try to help as much as we can. As Lisa mentioned, this may not be cancer, but may only be a wake up call to get you to look at your life style and make some changes. My ENT told me it might be a wake up call, but he thought it was cancer, and he was right. But I had a swelling in my neck, not an issue in my mouth, so you may be OK. I would suggest you not worry too much, as that won't help anything, and if it is nothing, then that's a good thing. If it is something, we'll be here to help you through it. We have all walked the same or similar path and advise new folks what to expect if treatment is needed. So hang in there and again as Lisa said "It ain't cancer till the pathologist says it is". My prayers are with you.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#16463 09-25-2004 08:17 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Jim
Welcome, I'm sorry that you are having to go through this but there are many on this forum who's dentist missed things, so you are on top of everything early, good place to be..
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#16464 09-25-2004 09:59 AM | Joined: Sep 2004 Posts: 4 Member | | Member
Joined: Sep 2004 Posts: 4 | Thank you all so much for the responses. I will try to be patient and think good thoughts. I will definitely let you all know when I find out. God Bless, Jim | | |
#16465 09-27-2004 11:26 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Hi Jim...hang in there...this is the worst thing, not knowing.
We are here if and when you need us , hopefully you won`t!
Take care
Marica
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caregiver to husband Pete. SCC base of tongue stage IV
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#16466 09-27-2004 06:43 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Hello Jim Gold star to you and your dentist for checking it out. You have found the right forum for love and support. Whether it is cancer or not, the wait to find out is a difficult time. Thnking of you, from Helen with love 
RHTonsil SCC Stage IV tx completed May 03
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#16467 09-28-2004 01:31 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Jim, soooo glad your dentist jumped on this. I am praying for good results.....Take Care and God Bless.....try not to worry, I know easier said than done! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#16468 09-28-2004 04:27 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jim,
Welcome to the neighborhood! Glad to have you drop in but sorry you had to find us. I am hoping you are just a visitor passing through. I don't know how you can wait from 9/21 to 10/5. It just seems to long to be patient. As a matter of fact, if you like, I will get on the phone and hound them for faster results on your behalf. I am feeling a bit fiesty today anyway. We often hear of delays like this in other countries but often it is just a day or two tops.
Best wishes for good news from your biopsy. You have a lull now as you wait and you should not worry while you are guarenteed cancer free until they can prove otherwise.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#16469 09-29-2004 02:16 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Jim,
I also from NJ, Trenton to be precise. I'd try to push to get the results ASAP. Waiting is such a drag. In the meantime, read this site and anything else you can to get you informed. It ain't cancer until they tell but the better informed you are when get a dx, the more cabable you are of making decisions for treatment. Fortunately, NJ puts you in easy distance from several major cancer centers. Make certain you go to one of them and some even have outpatint facilities for radiation.
Hope it is nothing and you just have careful dentist.
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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