| Joined: Apr 2013 Posts: 2 Member | OP Member Joined: Apr 2013 Posts: 2 | Hi! I am a64yo female newly diag. with squamous cell carcinoma. I will have a 12 hour surgery on May 2, to remove the cancer in my gums and jawbone on right side of face, also a tumor under jawbone. They will take skin and vein from left forearm, bone from leg and maybe muscle from upper chest to reconstruct my mouth. I will have NG tube and a trach.for up to two months. I have not cried nor will I do so, Cancer will not win, no matter what happens.
Oct. 2012 CT&FNA lump under rt jawbone Feb7 2013 Biopsy rt gum Feb28 2013 biopsy and 2 teeth remove Mar14 2013 CT&FNA lump under rt jawbone Mar21 2013 MRI Mar28 2013 Dx SCC rt jawbone and gum May2 2013 surgery will be done | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 | That's the spirit, Linda, you'll come through this all right with that attitude!
I wish you the very best
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Linda! Im very glad you have found OCF to help you get thru this. We will give you correct medical info and moral support. This is quite alot you are dealing with. Its ok to cry, everybody cries at times in their life. This forum is a place where its ok to vent if you feel the need. Dont let everything build up, getting a cancer diagnosis for many of us is shocking and brings with it a whole new range of emotions. Now that you have found OCF, just know we do understand as we have been exactly where you are and know how hard it is.
I have had the surgery you described, its called a mandibulectomy. This is a very long, involved surgery. Mine was 10 hours, but I did not have my leg bone used.
Ask for a possey muir valve trach so you will be able to talk when you wake up. Make certain you ask several people about this and insist you need this particular type of trach. It really will be a huge help!
I hope you have a caregiver to help you with everything. You will need lots of support to get thru this. Write down anyones name and number who offers to help you. tell them when the time comes you will let them know what they can do for you. The time will come and dont be shy to ask for help. Many friends and relatives arent sure what to do or how to help so they need to be told.
Please feel free to ask questions about your upcoming mandibulectomy and I will be happy to answer them.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | You GO GIRL!!!!!!!!!!!
You have found the BEST place to be there for and with you from now until forever.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | Linda, we're all with you as you face this enormous challenge. You sound strong and your attitude is great. Please let us know how we can help. You're part of our family now.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hey Linda... the surgery is heavy duty but a few people here have had a similar surgery. Bring something to write with to the hospital. Hopefully you have someone to advocate for you... please let us know how everything goes once you get a chance to... best of luck~~
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2013 Posts: 2 Member | OP Member Joined: Apr 2013 Posts: 2 | Thank you Christine for your post. you are the first person I have found, that had the same surgery as I will have. I saw where you were in a medically induced coma for 3 weeks, was that because of the pain or complications? I am really worried about the pain afterwards. How were you able to sleep the best; bed, couch or recliner. My daughter said I could use her recliner and I think it might be good. I have about a million questions about the process, esp. afterwards. Any and all info will be greatly appreciated. Thank you for kindness.
Oct. 2012 CT&FNA lump under rt jawbone Feb7 2013 Biopsy rt gum Feb28 2013 biopsy and 2 teeth remove Mar14 2013 CT&FNA lump under rt jawbone Mar21 2013 MRI Mar28 2013 Dx SCC rt jawbone and gum May2 2013 surgery will be done | | |
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