| Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | The visiting nurse can actually administer the fluids in your home. The IV needle, once in, can stay in the hand for a few days so that the rounds of IV can be completed. Talk to your doctor about your choices, sometimes things are less complicated than they seem at first.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Feb 2011 Posts: 45 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Feb 2011 Posts: 45 | Stacey, I am 2 months post radiation just like your husband. This is my second rad treatment and unless You have lived it It is hard to explain why we still feel so bad. There are days I can hardly get out of bed. I feel worse today then I did a month ago. I can take stock in the fact that for now I am cancer free but it does not take away the slow recovery. There are days when I think I am turning the corner and then...WAM...fell like hell. Like me ,unfortunately he has to pull himself up by the boot straps and take stock in his own actions and recovery. I think because we both feel so bad , its is human nature to try to get people to feel sorry for us. My wife does not play that game so when I am in the self pity mode I am in it alone. I get lots of help and support from the great folks here. He is the one that should be asking questions, and getting support from those that have been in his shoes and experienced the battle of radiation. Sorry to be so hard but It is an individual battle. Steve Hurlock
SCC of larynx,2/1/2011 surgery 16 times to remove papilloma on vocal cords,started TOMO rad treatment 4/11.2011 T2N0M0 possible invasion onto cartilage tissue Cancer back 6/2012. Polyp removed Came back spindle cell carcenoma 6/22/12
| | | | Joined: Nov 2012 Posts: 58 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Nov 2012 Posts: 58 | Thanks again for the advice. He agreed to go in for an IV for the next 3 days and is ok with me calling his Doctors tomorrow. He did not disagree with me about a nose feeding tube or PEG. He stopped the Gatorade due to a tangy taste and ate almost zero today plus little water. Hopefully, we can improve the situation tomorrow.
Stacey (Caregiver to Husband) Lymph Node Removed 10/12 Dx SCC MET 10/12 No Primary Tumor Found IMRT x 33 (Started RT late 11/12) CT Scan and PET Scan Clear 4/13
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | That's an encouraging sign -- his agreeing to go for an IV and to get a feeding tube. Maybe he is feeling really awful. Stacey, you have been very persistent in your efforts to get him support. Being a caregiver is very hard work and often very frustrating. Now, do take care of yourself and make sure you eat and get plenty of rest too.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | There are prescription medications, and OTC vitamins to increase the appetite..Marinol, megace, decadron, testosterone, insulin, melatonin, omega 3 fish oil, amino acids, wine, caffeine, but check with the doctor. Adding more fats to the diet will increase appetite, taste, lack of fullness, add more calories. Carbs will fill you sooner that fats will, and who can ever eat one chip or a nut. Adding oil to a drink can be done easily, a little sugar more so in it's effect or misting food with a sprayer may help with both swallowing, but also appetite, taste. Milk, creams, butter have the same effect. He may also have a food, taste aversion from associating the nausea with eating, vomiting from treatment, and may need to be deconditioned.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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