| Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hugs dude you have STAMINA and are my hero. Hopefully they will get it under control. You no doubt feel the same.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Charm,
Your stubborn nature reminds me of...well...me. So glad we have our better halves looking out for us. I know Allison would have done the same as Bev as she does threaten me often with hospitalization should I not do what she say's to do.
Might want to try and act on Bev's advice sooner in the future in recognition of your stubborn nature. At this stage in your recovery, time can be your enemy if you spend it in the wrong place. Acting quickly to even perceived problems should be your action plan for at least the next month.
By the way: in recognition of her meritorious service in the name of my health and care, I gave Allison a one week all-expense paid stay at a health spa in Arizona for a Christmas gift this year. She leaves next week and the timing couldn�t be better as we are currently under a blizzard warning up here in cold Michigan. Just can�t thank that girl enough for all she does. Your Bev looks to be cut from a very similar mold. I think we would both be looking at the grass from the wrong side without our personal saviors.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Great to hear from you all. I escaped from the hospital late yesterday, the major delay being a requirement to have a working nebulizer delivered and set up at home, plus the DuoNeb medication prescription filled. and a working suction machine prior to discharge. Suffice it to say that in order to do this, I had to harass, chide, and threaten multiple parties. although in the end, my harmonious relationship that I have carefully cultivated to be free of any of the above tactics, with one pharmacist turned out to be the key to success. but then she has always been reasonable and responsive to that approach which others apparently see as permission to put my requests on the back burner or ignore. Not out of the woods yet, still very weak, heavily congested, and treatments every four hours for about the next 20 days looks like my immediate future, but nothing I can't handle. Especially since the alternative was to have a permanent tracheotomy tube as was their initial recommendation. Hate to skip my gym workout today, but that's the price I pay for not acting earlier on this. Slept wonderfully in my own bed last night. Oh, I did not mention that one of the negotiated issues with the doctors at the hospital for my release was to see my cardiologist to verify that my insanely high readings on blood pressure and heart rate the entire hospital stay were in fact just objective evidence of my anger over rigid hospital requirements like being kept on a 24 hour IV drip, a 24 hour EKG monitor, etc etc that were never necessary for me yet non negotiable as an admitted patient. I know I should just let it flow off my back and accept it with zen patience, but on a visceral level, I see that as giving into bureaucratic evil, so it shows up in those readings. The heart issues predate the cancer although both were discovered within the same month. Still loving life though. Thanks again for all the support Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Hi, Charm glad you are home. I am really glad you were able to negotiate your way out of the trach tube. Very best wishes, Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Charm, I�m glad to hear you are home and doing better. You know Valentine�s Day is coming up � I think Bev deserves and extra special gift this year! Take care of yourself and listen to Bev.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Charm,
Glad to see you back at home. I am sorry to missed the post initially but so relieved you are not an alien from planetC.
I love your spirit but maybe you let this one get a bit beyond what's reasonable. :-) don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | You scared me. Not nice. I am away getting some much needed heat from the sun, so I missed the whole thing. Glad you are at home and that Bev WON a disagreement. She is now a hero of mine as well . I will be home on Tuesday and will check in again then. Until then - Behave Hugs Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | Charm,
Remind yourself that your principles are not worth your life, or the stress on your wife.
Bev, you're a good woman. I'd have kicked his ass myself!
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Thanks everybody Hey Kick a man when he's down why don't you? I'm hoping the cardiologist gives me a clean bill of health. He was able to avoid me getting stents 5 years ago and just using statins so I could get the radiation TX and later surgery. On the male side of my family, heart disease rules and it was only thru working out that i had already developed "micro vascularization" around the blocked arteries that showed on on a coronary calcium scan for plaque. so I had good flow.. Interesting description and explanation in the South Beach Heart Book . Reading the product insert, turns out that the nebulizer medicine revs up heart beat and blood pressure. Then I can focus on this radiation effect. I am very lucky to have Bev Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | You are lucky to have Bev, and what I love is that you show it to her everyday. I miss you guys! Keep swinging brother.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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