| | Joined: Feb 2013 Posts: 1 Member | OP  Member
Joined: Feb 2013 Posts: 1 | Hello out there.Found this site approx 3am this morning .Pray tell why a 51 year old man was on a computer in his living room instead of sleeping?Here is the lowdown.I noticed my lymph swelled up app 4-5 months ago,being the hardhead I am I never gave it a second thought.Big mistake.The last month I have lost my voice for the most part,coughing,the lymph glands have gotten very tender and painful.So 2 weeks ago went to see the doctor.He tried antibotics,symptoms got worse,got me in for a ultrasound,it did not show anything but alot of infection around the glands.He sent me to the hospital yesterday for a ct scan.They had me wait in a interview room.The news came that they found a mass under my tongue.Fear,Fear,Fear has set in have a appointment today to see a ENT. Right now watching the grandboy play with my bordercollie,I am in a tailspin right now with emotions,found your site last night and began to read.I hope I can be as strong as you folks.Where do I go next?I am at the hands of doctors I really dont know,thinking about calling my va doctor I have been his patient for 23-24 years and see what he suggest.What a blessing it would be if the mass was not cancerious but with all my symptoms ??? | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Hi, John - welcome to our site! Remember that it's not cancer until a biopsy says it is! I have to do some work right now, but wanted to at least say hi. Will check in on you later. Keep yourself busy until your appointment by getting a notebook and writing down your questions.
Maria
Last edited by Maria; 02-01-2013 08:59 AM.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi John! Hope it turns out to be nothing serious! But if it would be cancer, then you are in the right place for info and support.
Good luck!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi - hoping your visit goes well... By under your tongue do you mean base of tongue? (Down your throat?)
It could be an infection and I'm hoping it is, I know it's scary - we've all been there.
This is the place to be if you need support. Take care and best of luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Welcome aboard John. As Maria said, it's not cancer until the biopsy says it is. Either way, please let us know.
Last edited by Deejer47; 02-01-2013 12:28 PM.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | John, I can only imagine how scared you are right now. We're here to help in any way we can. And we're all hoping along with you that this is something non-cancer!
Let us know.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Stay with us John and let us know what the ENT says or does. There are many "experts" on this site that will help you and your family get through this whatever it turns out to be.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Sep 2012 Posts: 381 | Hi John,
Ditto to everyone's comments. Hope for the best, but do some research about questions to ask. This is overwhelming at first, but do what you can...If you're like me, you want some control, so find a good ENT in your area with experience in oral cancer, so if it's the worst, you can get a referral in ASAP.
Good luck and keep us posted.
Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
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