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Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Hey Doolittle

Okay, 4 pages into your intial thread, I want to apologize to you directly for "hijacking" your thread.
I hope your radiation on Jan 31 goes well. Please let us know how you are doing. Just open a new thread on your radiation and I promise I will only post relevant things to your particular issue.
On the plus side, you have seen the full debate on how aggressive TX should be. In rereading all the posts, the consensus is that we would do chemo as well as the radiation as our choice, which is what you asked about in your one and only post so far. The radiation only approach did not seem to garner any votes, but then I did "misread" some comments.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
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I responded with more than just a ?, but decided to delete it due to being inappropriate, but couldn't take the post out completely, and backspaced on edit. I guess I was hijacking the thread also, and apologize also. I put my signature back too, which hopefully the only thing to add is NED lol.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Aug 2012
Posts: 214
Likes: 1
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Aug 2012
Posts: 214
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Wow, this was an Epic thread. This should mke the OCF Hall of Fame.


Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Paul

And here I thought that your solitary "?" was a brilliant yet infuriating blowoff in the nature of a demurrer (a legal term for when a defendant responds: "So what?" to the pleading). I loved to file them back in the day. How perfect I thought; I need to remember that for future use.
For what it's worth, once I finally got my fentanyl and hydrocodone dosages correct (too little, too much this week) I attempted to massively edit my two posts, but the 6 hour window for editing was gone. Glad we resolved this.
Plus I see your location and signature are now back to normal. It's sort of weird how all our prior posts change so as to have current signature even when appended to a post years ago before I had even one recurrence. Little did I know then just how long and hard this journey was going to be. You are good company to make it with. I hope you can add NED soon to that signature line.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
Thanks Charm and for explaining the ? If ever presented before a judge, I will use that instead of pleading the 5th lol.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jan 2013
Posts: 1,291
Likes: 1
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,291
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man. this place is getting all slobbery with all them hugs and kisses. xoxox


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
I have deleted the ? post. It served no purpose on the forum. Paul, next time if you run into difficulties, please PM me. I could have deleted the post back when it first happened.

PLEASE....lets allow our new member Doolittle to have his thread. I notice he has not posted again. How about instead of hijacking the people who are having a discussion take it off the forum and discuss it thru PMs. Spats give newer members the wrong impression about the forum and are not helpful to anyone.

Thanks!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2013
Posts: 57
"OCF Canuck"
Supporting Member (50+ posts)
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"OCF Canuck"
Supporting Member (50+ posts)

Joined: Jan 2013
Posts: 57
Holy should check site more frequently lol am still working so have been off for a couple days thanks for all the responses have read and reread, my pet scan came back small activity in bot no activity elsewhere I meet with docs before rads and will discuss forum suggestions thank you. As I am in good health (besides the big c) I am sure I could handle both barrels, my rad doc (top doc in clinic they say) and the medical oncologist which he called the chemo doc both recommended no chemo things may have changed since pet scan though as they may do a biop of tonsil, not sure if they seen something there or want to rule out for rads in that location. I will try and pay attention more now that I am taking a holiday I prefer cooking the outside instead of the inside on holidays btw...no prob on the hijack always interesting reading..ken


46 yr old non smoker moderate drinker
Lump on neck
Dx branchial cyst by fna mar 2012
Op to remove dec2012 biopsy back hpv 16 scc
Starting rads jan 31 no chemo docs say?
Finished mar13
Pet scan june 30 NED :)))
Back to work and enjoying life
Checkup aug 12 all good
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Thanks for your understanding Ken!!!! I was concerned you had been scared away. This board has some very passionate members who all have the patients best interests in mind. We have walked this road and know all the bumps. Its hard to watch others go down the same path without offering our help. Everyone is an individual and will respond a little differently to everything, treatments, medications etc.

Wishing you all the best with everything!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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