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| | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | I don't want to hijack this thread. You can look through the other posts by search or post your own question. I just answered to a post on a realtef matter. It's had multiple factors than can be involved.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: May 2012 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2012 Posts: 31 | Yup....there's a chasm between those who promote the use of a PEG, and those who love the "wait and see". I started out at 97 lbs, so was glad that both my Onc and my DO said yes to a PEG before I started treatment. I got all thru rads without needing it, but the 3 chemo's I had after radiation took a toll in my mouth making eating/drinking impossible.
The one thing they did instill in me was a total fear of losing my ability to swallow....so even when I was getting 5FU along with the Cisplatin, I managed to swallow L-Glutamine mixed with water every day. It wasn't much, but it was enough to never lose the ability.
If you don't have 20 lbs to lose then I'd insist...in the beginning one of my biggest fears was dying of starvation while I was trying to kick cancer.
p
Nasopharyngeal Carcinoma Stage III T1N2M0, diagnosed March, 2012...Treatments started April 24, 2012, finished 8/28/12.
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