| | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Brendan,
I will pass on to you what I was told; If your the patient that is on the successful side your percentage is 100%.
I had an initial "When pressed" percentage that was much lower than yours. I now have two clear PET scans that say it was worth doing.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Brendan
Like Kelly211, my percentage of success given me was much lower than what you have been told. I had to really really press them to give me their estimate as they felt it was too depressing and I might not opt for treatment. Instead the visuals show it seems to have worked. I get my MRI on Jan 13th with results in and explained by the RO on the Jan 18th.
Plus Kelly211 ia right; all survival/recovery statistics are for groups, not individuals. For an individual there are only two statistics: 100% and zero. It either works or it doesn't.
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | A few years ago, I faced a similar situation with my 3rd round of OC. My odds of survival were slim and I had my 2 children to worry about. My decision was not easy to make. I almost decided to not try at all and almost quit before I gave it a shot. I learned a lesson from this. You cant quit before you at least try if not you will fail anyway.
Please give it a shot and you may be one who years later looks back and tells people you were one who beat the odds.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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