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| | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | That's right David, post treatment is worst. For me, the induction chemo was worst than everything combined theteafter, even radiation. Some other side effects last for years...17 yrs in some for Chemo Induced Peripheral Neuropathy CIPN, Chemo Related Fatigue, CRF...........
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Dec 2012 Posts: 8 Member | | OP Member
Joined: Dec 2012 Posts: 8 | Thanks David. I just had another CT Scan this past week. They found 3 more spots - mouth, lymph node under my jaw and lymph node just below my clavicle. It sounds like they are just going to expand the Radiation zone this coming week and hopes it will get that lymph node near the clavicle. Has anyone had their CA travel below the clavicle? I guess this has been very aggressive. Hopefully, after my newly ordered PET scan we can tell if it traveled more than just below my clavicle.
Thanks for all or any feedback! We are in this together!
Ron
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T2 - Oral Cancer
Stage IV
Neck Resection -October 26, 2012
3/20 Lymph Nodes (+)
Cisplatin/6600 Radiation - Began December 3, 2012 - 7 weeks
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hoping very much it hasn't an you get good news. Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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