| Joined: Feb 2003 Posts: 5 Member | Member Joined: Feb 2003 Posts: 5 | With the sugery I had, I was lucky, I had 50% of my tounge removed and 8 teeth pulled. The surgeon was from OU medical center that started a second part of the procedure where they took my right half of the tounge and wraped it around so I had a false tip. Immediate result clear speach right out of surgery. I have had heard that a lot sluring from other who were not as lucky as I was. SPEACH is the way to go! I now work at a call center and they can understand me, with 8 weeks of therapy. Just keep pluggin! | | | | Joined: Dec 2011 Posts: 8 Member | OP Member Joined: Dec 2011 Posts: 8 | Hi Carla, You have come to the right place. There are some really amazing stories here that inspired me to keep on with my own journey. One thing is certain that after enduring the worst of the treatment regimen, it can only get better. My small advice is to just keep your spirits high no matter what. I have realized that this is as much a battle of wills and mind as it is of the flesh! Speech therapy is really helpful and a good therapist can really do wonders not just with speech but also with other functions like swallowing and eating. I benefited a lot and am going for my surgery next Wednesday to address few rehabilitative issues. Unlike earlier now i feel like a veteran going into battle field! Keep your spirits up and all the very best with radiation therapy. God bless. Chandra
Chandra (49) Carcinoma Tongue 30 rad chemo cisplatin 6/20/10 surgery 60% tongue removed, mandibluctmy, flap reconstd, right lower teeth removed. Gross Trismus recur 4/2011 3 cycle chemo cisplatin, 5FU and Docetaxol surgery 6/2011 3 more cycle over 9/2011 Fit so far. weight added. 70 Kgs.
| | | | Joined: Dec 2012 Posts: 2 Member | Member Joined: Dec 2012 Posts: 2 | Hi Chandra, it has been over a month and I hope that by now you are feeling better after your surgery...I am in the middle of radiation again and about to start chemo with Erbitux...I hope to hear from you and wish you the best! MANY MANY BLESSINGS! Carla
1st:SCC tongue T2,09/09 2:LymphNode Neck, 12/09 Rad 35,Cisplatin,2/10 3:L Toungue, 2mm 12/10 4:L Tongue, 1mm 4/11 5:L Tongue,LND,Partial Gloss, forearm flap, thigh graft, Sept/11 6:L mandible 6mm, partial gloss, mandibulec, fibula free flap, graft thigh,PEG,RND,10/12, start rad/speech therapy.
| | |
Forums23 Topics18,170 Posts196,930 Members13,105 | Most Online458 Jan 16th, 2020 | | | |