| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Caroline,
Please let us know what the ENT says.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2012 Posts: 118 | Caroline,
I just want to say that coming to this site often and reading every post has really helped me with encouragement. It has also helped me to stay focused on the disease in a positive way. It is a learning experience here. Lot's of good info. It really helps the not knowing part. Trust me when I say this comes from my own experience.
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06)
tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi there... good luck with the ENT... they may want to biopsy the area in the first picture. It's scary as hell. It could very well be healing from where he bit his tongue. But better safe than sorry! Hugs... and hope he gets an all clear. If he does do keep a close eye on the area.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Nov 2012 Posts: 8 Member | | OP Member
Joined: Nov 2012 Posts: 8 | Thanks everyone we are on our way there now. Will update when we get home. Thanks for the support. | | | | | Joined: Nov 2012 Posts: 8 Member | | OP Member
Joined: Nov 2012 Posts: 8 | Okay sorry for the delay it has been a crazy day. We saw the ENT and she did a very thourough workup on him. She felt his lymph nodes and found nothing and she put a scope through his nose and down his throat and all looked good, vocal chords looked good, his ears, nose all good. She said he has the acid reflux which is causing the throat clearing and then she said the two spots on the back of the tongue were not anything but the one of the side she just wants to take completely off and send to pathology. It is small so she feels doing a biopsy is kind of pointless and to just take it all off and find out what pathology says. She said at this point we should not worry unless there is something to worry about. She said the only thing a bit concerning is that it has some dimpling but that still does not mean it is cancer. So that is where we are, he is also getting an upper GI series done for the acid and he will go in at 7:30 am on Tuesday to have this removed. She felt it with her hands and she did not feel anything that would make her think it was not just on the surface, so we are going to try and take her advice and enjoy life and not worry. | | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Good news so far! Let us know when the path results come back. I know you are feeling better now and can relax a little and maybe enjoy Thanksgiving.
So glad the ENT was able to see you so soon.
Gobble Gobble,
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Sep 2012 Posts: 381 | That is great news!
My tumour started at the back of my tongue and worked it's way forward. I noticed something wrong in Feb, and finally went to my doctor in April. She couldn't see anything (I could feel something but sisn't know what). It finally became visible neer the back in July, so probably about 8 months to get from your hubby's size to the size when it was removed.
Even if the pathology comes back with something, it is early.
Enjoy your turkey, and you have something to be really thankful for!
Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Great news... Hopefully if it is anything she'll get it all the first time out.  best of luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2012 Posts: 8 Member | | OP Member
Joined: Nov 2012 Posts: 8 | Hi everyone, he had the surgery today and he did well. She told me that she took it out with margins and then went back in and took out two more cuts. We go back in 9 days and she should have the results by then.
I have a question, let's say it is something but the pathology shows she got it all and the margins are clear. Is that the end, like with a basal cell carcinoma or does he still need to go through treatment? | | |
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