#15721 06-10-2004 09:48 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Hi Candle & Welcome,
You are so very brave and I'm sure that you have found this site for a reason. There are many caring and wonderful people on it that will be there for you when you need them. If there is anything that I can do please feel free to ask.
My prayers are with you and your family.
Take Care,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#15722 06-10-2004 10:31 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Candle,
Welcome to the board. You are so young to have been through all of this. What are they doing to treat your current cancers? As a two time survivor, I too am very interested in the your experiece with Eribtux. When I had the cancer in the larynx, I had wanted to try it, but the trials had closed so had to have total laryngectomy.
You will find many friends and support on this board. Welcome again.
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#15723 06-10-2004 12:49 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Oh Candle, My heart breaks for what you have endured and at such a young age. Your courage and positive outlook are an inspiration, thankyou for sharing your story on this board. My thoughts are with you, from Helen, with love.
RHTonsil SCC Stage IV tx completed May 03
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#15724 06-10-2004 01:01 PM | Joined: Jan 2003 Posts: 95 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2003 Posts: 95 | Candle,
Your strength is remarkable. I wish you well and welcome too.
Diane | | |
#15725 06-10-2004 03:43 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Dear Candle,
Thank you for sharing your story...I find such comfort hearing of the courage of people like you. You are so right...this cancer sure does put life in perspective and teaches us to enjoy life's moments so much more. We have also had such an awesome support group for our bible study...it's truly amazing how some good friends have rallied around us in prayer and help on a day to day basis. I will be praying for you!
Take care,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#15726 06-11-2004 10:05 PM | Joined: Jun 2004 Posts: 11 Member | | OP Member
Joined: Jun 2004 Posts: 11 | Everyone,
Thank you all soooo much for reading my post! I was almost moved to tears when I read all of your responses. I am really glad to be a part of this and I look forward to communicating with all of you.
More later,
Smiles,
Candle
SSC Larynx/Supraglottic Laryngectomy'98. Max Radiat-'98,'01. Liver resect-'00. Metastasis to lt lung'02&rt lung'04. Carboplatin&Taxol&Ifosfamide&Taxotere'00.Cetuximab'02.Cysplatin&Topotecan'03.
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#15727 06-12-2004 05:55 AM | Joined: May 2004 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: May 2004 Posts: 80 | hi candle,
welcome and thanks for sharing your story. you have remarkable courage and grace. sending you good thoughts for healing and peace.
gita
sister diagnosed 11/03 SCC maxilla keratenizing stg IV T1N1Mx; 4-7 positive lymph nodes; dissection 12/03 left upper pallette removd; radiaton left side 35 sessions 2/04-4/04; recurrence same side 4/04; chemo began 5/04 incl cisplatine, 5fu, taxotere
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#15728 06-12-2004 07:00 AM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | Candle,
Your story is so touching. You have been through so much and obviously handled it with such grace.
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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