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Jenkensmom #156204 10-13-2012 06:56 AM
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Paul's been in the hospital since Tuesday. He has a bacterial infection, they think from the port. Port was removed yesterday and next chemo that was scheduled for this Monday has been postponed. He'll either have to have another port put in or a pic line. Does anyone have experience with pic lines?

We both thought the first chemo wouldn't be a problem. Guess we were wrong.


Diane-wife to Paul, age 55
DX 9/17/12
HPV/SCC/BOT Stage 4a
Non-smoker/casual drinker
Otherwise healthy
9/24/12 Cisplatin, Taxotere,5-FU - 3x
12/3/12 Rad x 35/Carboplatin x 3
1/15/13 DVT upper thigh
Passed away 1/23/13
Jenkensmom #156210 10-13-2012 08:10 AM
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I had a picc line. PICCs are for more short term use, I had mine for 6 months though. Mine had 2 lines hanging out of my arm. You maintain it just like you would a port if the port is accessed. You still flush and heparinize it daily, clean the site weekly with a sterile kit. I instructed my husband on how to do this for me since I use to be a nurse. The big pain with piccs in your arm is that you have to bag it and wrap it as best as you can to prevent direct water contact when you take showers. I would use the cling Saran Wrap, some use plastic trash bags with tape. Piccs are something you visibly see and can get tangled in clothes when your changing so make sure it's got a protective sleeve over it so it doesn't get caught up.

Hope this helps, if you have any other questions, please ask away.



Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
Jenkensmom #156219 10-13-2012 11:44 AM
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Oh my goodness.....Can they do another port on the other side? Kevin has his on his left side so he could shoot his rifle from his right shoulder. What a bummer. So sorry you are dealing with this. I think in the long run the port would be easier...but that's when they are done successfully!
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Jenkensmom #156222 10-13-2012 12:45 PM
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Ports need to be close to the heart.

Ive had a picc line for 8 months and it wasnt a big deal. I had a visiting nurse come weekly that took care of changing my picc line dressing. I gave myself the 3 daily doses of antibiotics. Mine was such a long term thing as I had some pretty serious issues after a mandibulectomy.

Best wishes To Kevin!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Jenkensmom #156230 10-13-2012 06:01 PM
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That's what I thought Christine; about the port placement. I was a little confused as to why there was even a choice when Kevin got his.
Anyway...Diane, please keep us posted on Paul.
Praying,
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
Jenkensmom #156235 10-13-2012 07:17 PM
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My understanding is that they can do a port on the left side but they prefer the right where it was. Because of the bacterial infection, I'm concerned from that standpoint as to which one is least likely to cause the same problem, another port or a picc line. The doctor says they can leave a picc in for 6 months which should get him through the remaining 5 chemos. My thought is that anytime anyone accesses the port or the picc there is a chance of introducing bacteria.


Diane-wife to Paul, age 55
DX 9/17/12
HPV/SCC/BOT Stage 4a
Non-smoker/casual drinker
Otherwise healthy
9/24/12 Cisplatin, Taxotere,5-FU - 3x
12/3/12 Rad x 35/Carboplatin x 3
1/15/13 DVT upper thigh
Passed away 1/23/13
Jenkensmom #156237 10-13-2012 07:45 PM
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Posts: 805
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Kevin's is on the left. I don't know much about a pic. So sorry you are going through this.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
KP5 #156466 10-19-2012 12:34 PM
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Posts: 51
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Paul came home from the hospital after 6 days. There are conflicting opinions as to what caused the bacterial infection because of the timing of the testing. Port culture was negative but they had been using it to run antibiotics. Urine was negative but they didn't test it until after antibiotics were given. Guess we'll never know. They ended up postponing his 2nd chemo treatment for one week and removed the port. He had another one put back in today on the left side and will have chemo on Monday. The good news........After only one chemo treatment, Paul's tumor shrunk by 80% !!!!


Diane-wife to Paul, age 55
DX 9/17/12
HPV/SCC/BOT Stage 4a
Non-smoker/casual drinker
Otherwise healthy
9/24/12 Cisplatin, Taxotere,5-FU - 3x
12/3/12 Rad x 35/Carboplatin x 3
1/15/13 DVT upper thigh
Passed away 1/23/13
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