| | | Lady1 Unregistered | | Lady1 Unregistered
| HPV+ stage 4, laryngoscopy tomorrow to determine primary site (squamous cell Ca lymph node near parotid gland showed on MRI-surgery 2 weeks ago), appt. with Moffitt on Monday. I understand HPV+ is better responsive to radiation so that is good news. | | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | Lady, Glad you found the OCF forum. Wealth of information here the people here are happy to help. You'll be in good hands at Moffitt Cancer Center. I go there and am so glad one of my doctor's suggested Moffitt. If it wasn't for him I don't know where I'd be today too much time running around to different doctor's. I wasn't diagnosed HPV but there are many here who have been they can help you. Hope all goes well Monday keep us posted. Take care, Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | | Lady1 Unregistered | | Lady1 Unregistered
| Wow from NY all the way to Tampa for treatment? Glad you had a good experience there. Just anxious to get started. I understand this waiting is the worst part. Will be glad to get biopsy done tomorrow. | | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Another Moffitt cheerleader here. Bill is a 5 year survivor after his diagnosis at Moffitt.
Wishing you all the best as you begin this journey. Glad you found this site...it will be your best ally thru your treatment.
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I also was treated at Moffitt and I was HPV+ although that was not determoned until post Tx. I do a lot of work for Moffitt and know a lot of the docs. Who do you have an appt w/?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | I live in Fl I was from WNY.
Hope all goes well with you and your appointment.
Take care,
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome Lady! The best choice of treatment center would be a top rated cancer center. You are fortunate to live close to one. Several members have traveled all over the country for second opinions at the top centers. When someone has a complicated case it can be the difference between life and death.
Being a caregiver is a difficult job. To me caregivers are angels, carrying the world on their shoulders while wearing a smile. We are here to help support you both. Make sure you take a few minutes every day for yourself so you can avoid becoming overwhelmed. Even if its a walk around the block to clear you troubled mind, it really does make a difference.
Best wishes to your patient with everything.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | | Lady1 Unregistered | | Lady1 Unregistered
| We are trying to sort through who to start with there since he has already had surgery and dx at Cleveland Clinic. We have appt with Dr. J. McCaffrey so I assume that is the right entry point. Just anxious to get chemo and rad going- don't want any delays. | | | | | Joined: Apr 2009 Posts: 329 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | Lady,
I have Dr. Thomas McCaffrey, Dr. J. McCaffrey is his wife. I don't know anything about her I really do like Thomas McCaffrey. He's been very good to me and others I've seen him treat.
I'm sure Judith McCaffrey is good too.
Keep us posted.
Take care,
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | [quote=ConnieFL]Lady,
I have Dr. Thomas McCaffrey, Dr. J. McCaffrey is his wife. I don't know anything about her I really do like Thomas McCaffrey. He's been very good to me and others I've seen him treat.
I'm sure Judith McCaffrey is good too.[/quote]
I believe that she is actually his daughter (??) but she is who Bill sees. In our humble opinion, she is very thorough, non-rushed, empathetic, etc. During appointments with her that have followed a PET scan, she has stopped long enough to order them up and take a preliminary look at them to assuage our worries until the official report is available.
You are in good hands,
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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