| | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | OP  "OCF across the pond" Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 58 | I am not sure what nodes they want to take out. Can they say that there are cancerous nodes from CT or MRIs scans?
The tumour is on a left side tongue
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
| | | | | Joined: Dec 2011 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2011 Posts: 126 | if the tumor was on your oral tongue (and not base of tongue), it is most likely HPV negative. They didn't test my tumor for HPV status until surgery - the doctor said before surgery he was pretty positive it was HPV negative, but did the test to give us our peice of mind.
Emily - 24 years old at diagnosis
HPV-, no risk factors
T2N2b Squamous Cell Carcinoma
Left oral tongue, poorly differentiated
Hemiglossectamy, reconstruction, partial neck dissection
30 Radiation treatments, weekly chemo (cisplatin)
1/13/12 last day of treatment
Diagnosed October 2011
| | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | | OP "OCF across the pond" Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 58 | Thanks Tina! I am keeping you in my thoughts too and will pray for you on 11th!
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
| | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | | OP "OCF across the pond" Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 58 | Thanks! I am sending you my healing thoughts too! I know you have two upcoming surgeries!
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
| | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | | OP "OCF across the pond" Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 58 | yeah, i think the tumour is on oral tongue (not base). It is on a left side and I can see it well enough when I open my mouth... I hope then that it's HPV- too... How come did I get it then? I don't smoke and don't drink!
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | The cancer slides have to be tested for the presence of the virus and it's hardly ever found on the oral tongue so I doubt that it will test positive for HPV. There are many who are diagnosed with SCC who were never smokers and do not test positive for the virus. Their cause is unknown at this time.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | There are quite a few of us here who aren't smokers or drinkers, and some quite young - for me it was chronic irritation to that area of my tongue. I would be very surprised if comes back HPV positive.. For this cancer, surgery, then rads and chemo is the best treatment. Be agressive from the start. Hugs and good luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | | OP "OCF across the pond" Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 58 | Hello people,
I just have a question.
Sometimes, my tongue cancerous ulcer is sore, sometimes it is not.
I wonder if anyone else's ulcers change (used to change) in terms of pain?
Last edited by Max1987; 10-10-2012 02:21 PM.
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Cancer can be painful. Sometimes it comes and goes. Hope you can get some pain meds to make it easier.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | | OP "OCF across the pond" Supporting Member (50+ posts)
Joined: Sep 2012 Posts: 58 | My operation is coming up and feeling a bit anxious. My parents are coming tonight so they will be around to support me in my time of need.
I hope to have a great day with them on Sunday before we go to hospital on Monday...
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
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