#15470 05-20-2004 03:22 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hello Mary!
Congratulations on your cancer survival! Most here are Squamous cell people but we are not discriminatory. You might tell a little more about your treatments so we can relate.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#15471 05-23-2004 12:10 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Hi Mary
Welcome to our community, and contratulations on your cancer servival from me also. There was a poster here a few months ago who'se father in law had oral malignant melanoma, they also felt sort of out in the dark because of the rarity of that type of cancer. Curious about the type of treatment you recieved.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#15472 05-23-2004 01:43 PM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | You have come to the right place to talk, vent, ask, help just about everything you can think,,so can we,,,i am new to this site as well,, hope we can become great survivors together....Always Miss Vicki | | |
#15473 05-23-2004 05:23 PM | Joined: Mar 2003 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 62 | Welcome Mary, and once again congratulations on your cancer survival. Happy that you found us and you won't have to feel alone any longer. As the others have said this is the place to ask any questions you may have or vent if you feel the need to.
David | | |
#15474 05-24-2004 06:28 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Let me add yet another "welcome to the boards"!!
I discovered this wonderful community in January right during the middle of my radiation treatments... There are some wonderful, wonderful angels here... So feel free to ask, vent, cry, celebrate, etc. here... You are guaranteed to have listening ears and supportive shoulders...
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#15475 05-24-2004 07:53 AM | Joined: May 2004 Posts: 2 Member | | OP Member
Joined: May 2004 Posts: 2 | Thanks for the warm welcomes. I think my docs (primary, ENT, oncologist, etc) even find it frustrating because they are unable to give me much info on malignant melanoma of the tongue, causes, survival rate, treatment options besides the surgery, etc. Besides very regular visits sometimes I worried I'm going to show up for a doctor's appointment but at the wrong doc  checkups, bloodwork, and then body scans every six months there isn't much they offer but to try and stay on top of it and request that I stay on a very healthy diet and exercise. Any changes in the way I feel or any lesions I'm to go in asap. But it will be nice to at least have someplace to go (these boards) when I need to talk, vent, cry, laugh (I joke with the docs that I've been poked and prodded, etc so much but too bad none is for enjoyment). I also tell my children that I'm one of those special one in a couple of million people to get this. Mary
Mary K.
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#15476 05-24-2004 08:15 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Mary
As carer and a patient I worry that one of us will finish up at the wrong docs.. UM.. could be good..lol.. he could have my op.. but I might find his prostate cancer a bit difficult...
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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