| Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | Oh, and ask about what to do about constipation. That hit me first and was/is the worse ever had... The chemo hasn't made be very nauseated but they said not to take laxatives, just stool softeners and then they suggest prune juice... FYI
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | If you can tolerate it, try some pineapple juice or eat some canned pineapple. If it bothers your mouth, when you get your tube you will be able to put some right down the tube. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Oct 2011 Posts: 67 "OCF Canuck" Supporting Member (50+ posts) | "OCF Canuck" Supporting Member (50+ posts) Joined: Oct 2011 Posts: 67 | I used Restorilax (sp?) mixed in with my liquid meals, as recommended by the cancer nutritionist. It works differently than regular laxatives. I just wished they had told me before, that constipation would happen from Tamoral and other pain killers. The pain was honestly worse than the cancer pain! After trying suppositories and even enemas - I was ready to get out the rubber gloves - I think it was EZJim that talked about that?
Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation. Leukoplakia Bx Feb 2011 - Lichen Planus. Bx May 2011 - Hyperplasia. Same sample retested as SCC. June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia. T3N1M0 Stage IV. | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | A topic often discussed here several times a year. My vote has always been for plain old glycerin suppositories. Here is a thread from last year about the little "c" including rubber gloves. suppositories Charm
Last edited by Charm2017; 09-14-2012 06:02 AM. Reason: typos
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | The old rubber friends: a last resort to be sure, but I was damn glad I had them.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Oct 2011 Posts: 67 "OCF Canuck" Supporting Member (50+ posts) | "OCF Canuck" Supporting Member (50+ posts) Joined: Oct 2011 Posts: 67 | Ah! Thanks Charm and David2 for clearing that up. It was you David2! I used dish-washing 'Platex' gloves to get my compression stockings on to alleviate my swollen legs, ankles and feet. I actually thought about using them 'elsewhere', but now I realize that surgical latex gloves would have been a better thought. Eventually it cleared on it's own. It was like passing 3 golfballs. I have never been so relieved in my life!!!! Great memories eh? And it IS funny what you share on this forum
Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation. Leukoplakia Bx Feb 2011 - Lichen Planus. Bx May 2011 - Hyperplasia. Same sample retested as SCC. June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia. T3N1M0 Stage IV. | | | | Joined: Oct 2011 Posts: 225 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Oct 2011 Posts: 225 | Yes Shauneen, it's one of the few places - cyberspace or elsewhere - where there's no such thing as "too much information!". When constipation struck my brother, we called IT the BIG C and his cancer the little c. It can be shocking when you're already going through so much. Why on earth the doctors don't have you forewarned and forearmed about it is a mystery to me.
Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good. | | | | Joined: Sep 2012 Posts: 74 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2012 Posts: 74 | I ended up in the ER with 3 enemas when it got so bad one time that I started vomiting and couldn't stop. After that, I used a lot of stool softeners, Fiber-con, prune juice, suppositories, and Fleets. The only pain I had that was worse was when I had mucositis, and I got drugs for it! I always thought it was ironic that I had no pain from something that was killing me and such intense pain from something as simple as constipation.
mausmarrow.com Age 59 ex-smoker 1989 1/10 dx MDS (blood cancer) 2010-11 21 cycles Vidaza 11/10 Bone Marrow Transplant 8/31/12 dx SCC left BOT HPV 16+ T1N2cM0 10/11/12 TORS partial glossectomy clear margins 10/24/12 bilateral ND/ii-iv 92 nodes all clear 10/30/12 dx revised T1N0M0 no chemo or rads
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | When I was recovering from robotic surgery this past April (female stuff) and experiencing constipation and the joys of trying to get down on the floor to position myself like those little pictures that came with the Fleet enemas, I found out it was Hydrocodone that caused the problem so after quitting the Hydrocodone, and just staying with my googled list of "Foods to avoid constipation", everything came out just fine! Warm prune juice zapped in the Microwave and accompanying each meal really did the trick! Don't wanna go there again!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Oct 2011 Posts: 67 "OCF Canuck" Supporting Member (50+ posts) | "OCF Canuck" Supporting Member (50+ posts) Joined: Oct 2011 Posts: 67 | I laughed so hard at this I had tears steaming down my cheeks! [quote=Anne-Marie]the joys of trying to get down on the floor to position myself like those little pictures that came with the Fleet enemas[/quote] I did the same thing, but I chose the "on your back" position. I got in the tub with my feet in the air. My Tim had to be out of the house when I did this, as I didn't want him to hear my screams. Such fond memories.....
Last edited by Shauneen; 09-17-2012 06:55 PM. Reason: Spelling of course
Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation. Leukoplakia Bx Feb 2011 - Lichen Planus. Bx May 2011 - Hyperplasia. Same sample retested as SCC. June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia. T3N1M0 Stage IV. | | |
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