| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Anyone living near Cleveland, Ohio, come out and support the Cleveland Dental Hygienists! The walk is September 8th in Sagamore Hills, see link for more details: http://www.oralcancer-screening.org/events/index.php?eID=2630Support OCF, make a difference!! TEAM WORK MAKES THE DREAM WORK!!! Thank you!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | At this walk just like any of the others, you will get to meet fellow survivors and caregivers. Too often survivors feel isolated and alone like no one else understands what they go thru and how they struggle after treatments to regain their former lives. Meeting other survivors in person is a memorable experience! Even if you are not up to walking, please consider attending anyway. Oral cancer survivors are free but you still need to register each person attending. Many OCF members will begin their own fund raising pages. Many survivors or families of the ones we lost will create teams and make a big day out of the event. If anyone needs help with creating their own donor drive page, please ask and I can help you. I will be the speaker at the Cleveland walk on Saturday. Hope to see you there!!!! 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | I was very happy to attend the Cleveland walk, soggy though it was! Got to talk with my virtual friends ChristineB and SueZ in person. Congrats to Christine on a moving and effective speech, and to SueZ on her fund raising skills.
If you are thinking of attending one of there walks, and are afraid that it would be too emotionally or physically taxing - I think I can put your mind at ease. There is a feeling of support and energy and hope for the future - and if you can't do the walk, or the whole walk (like me) there will be place for you I am sure.
Thanks to the wonderful Dental Hygienist's Association of Cleveland for sponsering the walk.
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | The Cleveland walk had a surprisgly large turn out for the weather being so lousy. It was pouring rain. At the end of the walk it finally cleared up. I was thrilled to meet in person Shannon Nanne, the organizer of the walk. She worked so hard and got her whole family involved, even her 2 small children helped out. There were several OCF members attending including Maria, Suez, Ginny and Mike. I know Ginny and Mike have also met David in FL. What a great time it was chatting with these fellow survivors and caregivers! We are our own little club and truly understand each other. Sue raised over $1000 with her donor drive fund raiser! Way to go Sue!!!!! It was my pleasure being the speaker for the Cleveland walk. I urge anyone considering attending one of the walks, PLEASE take a few hours our of your day to help support OCF. It means so much having survivors attend, it shows others that there really is a future and hope of a good life after the battle. It shows people attending what oral cancer is and how brutal it can be. The biggest motivator to me is to speak up for those that we have lost and to teach the general public about how deadly OC is and the importance of yearly screenings, HPV, and the Guardisil shot. Im pretty sure my message sunk in
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | From what I've heard, Christine - your message sunk in BIG time! I'm so proud of you and all that you do to help and encourage others and to spread the word about OC. Thank you, thank you, thank you - I'm so glad we have You!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Ditto to what Anne Marie wrote, Christine. We'll be looking for pictures on Facebook, and maybe a video of your speech? I know you did a wonderful job because that is what you do.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Thank you thank you thank you! It wasn't me it was ALL my friends and family who helped me raise the money and next year I am going to get an earlier start and raise even more!! God Willing! So nice to meet you Christine and Maria! She lives up the road not too far from where I live like only 25 miles! So glad she came!! Yes I cried when Christine spoke...especially when she spoke of Nate... What a survivor she truly is!! I put pics up already what few I took but they are the ones that count it's of us OCF members!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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