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| | Joined: Aug 2012 Posts: 7 Member | OP  Member
Joined: Aug 2012 Posts: 7 | thanks for the advice! i will do as you say! | | | | | Joined: Aug 2012 Posts: 7 Member | | OP Member
Joined: Aug 2012 Posts: 7 | thanks and i am getting with my caregiver today and getting her on this site! | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | We will be glad to be here for your caregiver, too!
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | I know that as the caregiver this site was my life saver. I was able to get questions answered at all hours of the day and could be as open as I wanted. I cried, yelled and vented like crazy!! Please have her get in touch with us!
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Apr 2012 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2012 Posts: 60 | Hi! I wish I would have found this forum before all my cancer started, because there is a wealth of information from people who have been through it. I was fortunate that my husband took care of me in the first six months. I had a trech, a port for chemo, and a feeding tube before I even started my first appointment for Chemo. I had a hard time asking for help, but it came time to ask due to we are self employeed. One of us had to keep the business running, but I have wonderful friends who helped me until I could drive my self to appt's. So keep us posted and good luck with your surgery.
10/10 IV OSCC metastatic to lymph nodes. 10/10 Peg,Port,Trech. due to rad scarring cannot swallow. 9/12 Pet clean. SCC back again 11/12. Tumor attached to jugular, Rad DX left side of neck 11/19/12. No Chemo or Rads. MRI on 1/11/13 for chronic pain w/pet scan 2/15/13.
| | | | | Joined: Aug 2012 Posts: 7 Member | | OP Member
Joined: Aug 2012 Posts: 7 | if you cannot swallow, what do you do? | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hopefully you have a peg in place for nutrition and fluids... And magic mouthwash to support you in trying to swallow - it gets rid of the pain temporarily. That's depend on whether the reason you can't swallow is pain or physical - take care
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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