Caroline, we have all been there and we know it's scary at times. Please get a referral to an ENT. My doctor found a spot on my pallette and sent me to one and he sent me for a CT scan the next day. Once you are referred you can put your mind at rest and find out what is going on. ENT is a must though. Worrying and googling just causes stress. Believe me I know because I did it.

Hi everyone,
I just would like you to be updated so far. I have been to my Dr, and explained about my mouth sore/spot. Also explained about my ear and neck pain, shoulder blade pain. She took a look into my mouth and felt along my neck and shoulder. She said the neck pain ect, is down to muscular. And that I should go to my dentist, for the mouth issue. She also said that these two were not connected. I went to my dental practice. But demanded to see another dentist. After a more thorough exam he has told me there is nothing to worry about. That the sore is down to sinus drainage. I have to complete the course of anti biotics , then go back. I have been to see a physio, and have been told that my sternocleidmastiod muscle is really inflammed. And that if does not get better with in a week to go to my dr. So I am not really any further forward. I don't feel my concerns are being taken seriously, so I have just got to try and stay relaxed, and wait. So frustrating. Thanks again for all your support and guidance. I will keep updating.
Caroline x

I would stop putsing around with dentists. I saw a dentist and oral surgeon and they kept messing around with me for 5 months. The one person who told you to see an ENT gave you a good suggestion. I would tell the dentist that said it was just sinus drainage, that if the antibiotics don't work, you want a referral to an ENT. You have been dealing with this for far too long for them to keep playing with you. If all of the things they have tried, as well as the Anti's don't work, and it's been how long, then they need to refer you to someone who is more qualified to help you and not take so long! Best of luck, you are in my thoughts!

Caroline,

My GP and an Oral Surgion both had a problem with figuring out my "Red Spot" it was an ENT that nailed it down.

Go to the search bar and type "how potato chips saved my life" and you can read how I got to the ENT.

Caroline--you clearly seem worried and not fully reassured by the care and responses you have received so far. ENTs are the experts in this area and tend to have MUCH more experience than dentists in sorting out cancer from other issues. A second opinion by an ENT would give you more definitive information and help you be more at ease, as otherwise this may nag at you for many months more. A quick biopsy in the office, and the more thorough exam than an ENT can perform, can make all the difference.

Time to put your foot down Caroline

A referral via your GP will work just as well as a referral from a dentist. Pick the one that you feel is most likely to do what you ask and then lay it out for them.

You have been going through this for 6 months and so far the problem has not been fixed. Remind the doctor/dentist that despite adjusting the dental plate and taking antibiotics you still have a sore in your mouth. Let them know their solutions are clearly not working. You would like a referral to the ENT to get to the bottom of this once and for all. Now. Please. And no, being shunted back to the other healthcare professional is not an option - it didn't work the first time so why do they think it would work this time?

Why do people do the same thing over and over on the off chance the result will be different to the first time they did it. It's like looking for your lost car keys - you know you checked the dresser already, but you keep going back to it in case they have magically appeared. The exception would be any woman's handbag ...

For what it's worth, odds are you do NOT have cancer. Oral cancer is rare and even rarer for young women. However, you need to settle your mind so do whatever you need to to get that referral to a specialist.

It took me almost a year before the Drs would listen. ER Drs are manily who I told because this mouth sent me to them. Damn it was bad with teeth falling out taking fillings with them. Then one day a Dr finally listened and did a biopsy. I was right. Cancer had moved in. The Dr called for a second opinion and told the other Dr not to be gentle because I knew what was wrong. Then the fun began.

You really have to advocate for yourself and get to an ENT. No question about it.
Kathy