| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Everyone! Please check out our events link for an event near you! http://www.oralcancer-screening.org...hresult&r=0&e=1356998400&t=2July 11 - Minneapolis, MN - Golf Tournament July 28 - Louisville, CO - Walk September 8 - Cleveland, OH - Walk September 22 - Andover, NJ - Walk September 29 - Bethlehem, PA - Walk September 30 - Plymouth, MA - Walk October 27 - Saint Paul, MN - Walk October 20 - Seattle, WA - Walk November 3 - Camanche, IA - Walk November 10 - Newport, RI - Walk If you are in the area, please come out and support the event, all our organizers work so hard to create awareness! If you need more info, please contact me here or [email protected]. Thank you! Susan
Last edited by Susan Lauria; 07-09-2012 01:17 PM.
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Thought I would bring this up to the top in case someone did not see it!
Check it out, get involved! We need you!
Thank you!
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I will be speaking at the Cleveland walk in September and also at the Twin Cities walk in October. I know of one OCF member who will be joining me in St Paul. If anyone else lives anywhere near these walks please let me know so we can meet up.
Attending any of the walks helps to spread awareness. If you arent up to walking its ok, you dont have to walk to attend. I know I cant walk more than 1 mile or that is all I can do for the day. Bring along some friends and have a great time. There is no better feeling than meeting other OC patients and caregivers! The first walk I went to I kept crying out of relief to be among others who really understood how awful OC is. Coming face to face with other survivors helps show solidarity and helps to promote the site. It brings awareness to the general public who unfortunately most do not know what oral cancer or its risk factors are.
If OCF has helped you at all, please take a few hours out of one day to give back by attending a walk. It really does make a difference!
Please contact me if anyone from OCF is able to join me in Cleveland or St Paul.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | alrighty Christine!! I marked on my calendar for Sept 8th's walk in Sagamore Hills! Sure hope it's not raining like it was last year when I went. I hope I can make it this year if all goes well in September!!!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Yippeee!!! Cant wait to meet you, Sue Try to get Ron to come with you. Since we facebook, we should be able to easily spot each other. Also, I always wear my burgundy Make OC History tshirt.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | oh heck no Christine he would never come. He's not that kind of person. He hates that I'm even on this website and I can not even talk to him bout any of you...he don't want to hear nothing about anybody else with cancer or about cancer or anything at all with the word cancer. TV makes him nuts if he hears it on there whether news, or a tv show...it makes me nuts you don't even know.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Such a shame he is one who doesnt want to know any info or people. Im sure he would benefit from learning about his disease.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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