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#152412 07-25-2012 02:44 PM
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Hi everyone. Just want to keep you all informed on my treatment in Boston.
I was admitted to. Brighams woman's Hospital last Wednesday because my tumors were causing severe horrendous migraines and bad double vision. They released me yesterday and I'm staying in Fitchburg with my sister now.I'm am going to be getting some radiation to the brain area to stop the tumor and then they will continue with Chemo. I'm doing okay resting and eating as much as I can and just trying to see my family as much as I can. It sucks knowing that I wont be cured but I did put up a struggle anyway. The Drz treating me are wonderful and I'm happy with my decision to move back home. I will be sure to keep every one here updated.


4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16
Joined: May 2012
Posts: 114
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Thanks for keeping us updated! I often wonder and worry when people drop off the radar for a little bit. I'm glad you are being treated well at Brigham, though I can't say that I'm surprised. Being from Boston myself, I am familiar with the many amazing hospitals and doctors in this area.

I am very happy to hear you are spending time with your family. Though sad to hear your treatment is not curative. You are a strong person and have a great attitude about the path you have traveled. I will be thinking of you, sending you and your family lots of peace and love, and wish you the very best.

I look forward to hearing how you get on over the next weeks and months. Are you staying in MA indefinitely?


Amy CG to mom Janet - diag w/ early SCC 8/11-surg w/ rad neck dissect & graft from arm/thigh 9/11-evid in nodes tx 6 wks rads (5/wk) w/cistplatin (1/wk for 6 wks) began 11/11-wk or 2 break 12/11 due to severe side effects-done 1/12- 3/23/12 mets to liver lung bone-hospice 4/7/12-lost fight 4/22/12
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So glad you are doing well, and spending time with family, praying for a miracle for you - and thinking of you.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Amy..yes I'm back forever. You really have to be around family times like these.
Thank you Cheyrl


4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16
Joined: Jul 2011
Posts: 945
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Hi, Plantgirl
I hope that they are able to get the migraines stopped soon - they are truly miserable. I am glad that you are with your family and have their love and support, and that they have yours. I think of you when I groom my mare, and wish I could somehow share the pleasure of that simple act with you.
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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So sorry to hear you have been hospitalized. Glad you have checked in. When we dont hear form people in a while, we get concerned. Hang in there and make the most out of every day.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 596
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I'm wishing for you all of the peace and comfort the world can bring. Enjoy your time with your family. I wish I had a magic wand...

Hugs to you,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Kerri #152438 07-26-2012 05:23 AM
Joined: Jan 2009
Posts: 476
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[quote=Kerri]I'm wishing for you all of the peace and comfort the world can bring. Enjoy your time with your family. I wish I had a magic wand...

Hugs to you,
Kerri [/quote]

My thoughts exactly! Wanda


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
Joined: Nov 2010
Posts: 74
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Posts: 74
I went to the Radiation and Chemo center here in fitchburg yesterday where they will be doing all the procedures in conjuction with with working with Dana Farber and Brighaman and womens. I truly have a wonderful team this time who is absolutely dedicated to getting me back up on my feet at least for a while.The Cancer center down the street also has the Reiki massage which if anyone here has done they will attest too. Pure Heaven

Last edited by plantgirl; 07-27-2012 08:59 PM.

4 cancerous tumors stage4 Surgery 10/26/2010 Radiation 2x a day for 4 weeks (started Dec 13th 2010)
Reccurance discovered Nov 2011. Tumor behind left jaw. Erbitux, Taxol and Paraplatin for 6 wk. Surgery scheduled for Feb
50 year old woman smoked for 30 years quit 3 years ago light drinker HPV +16
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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Posts: 5,260
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Awesome! Hugs!!!!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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