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Joined: Aug 2010
Posts: 75
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Aug 2010
Posts: 75
So glad surgery is behind you and his healing is well underway! I can't offer thoughts on supplement question, Jim wouldn't even take an aspirin before he got sick. I do know sometimes you have to take matters into your own hands so long as there won't be any bad reaction to something prescribed especially if it helps him feel good. The trach tube does take practice but once I got the hang of it Jim wouldn't let the docs or nurses touch it. I know I babied him...but I'm glad I did.
Your dad is lucky to have such a caring daughter. Take care!


CG to sp age 53
4/10 BOT IVb
6/10 Ttl Gloss Lrngectmy L Mndbltmy 5+ Nodes
7/10 Cispl & Rad
1/11 recur lung mets
2/11 Clin Tr Erb Carb 5FU last 5/11
7/11 Tumor growth began wkly Bleo, Taxol, Carbo
10/28/11 Hospice; Passed 11/7/11
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Hi - if he's going for radiation best not to do any supplements until after he's finished rads for about a month. Some of them can interfere with the work radiation is doing and usually the recommend stopping them 1 month prior to treatment. I guess the figure why start as they usually do rads within 6 weeks.
As for dr Irish he is awesome. Really - bedside manner comes and goes with him. I get the feeling he is super busy but has never blown me off or my concerns he was actually very approachable last month when I saw him. I just know that he takes 15 hrs to work on a patient, he's sees cancer all day long, and must have multiple surgeries weekly so I cannot imagine how he's not tired and frustrated all the time. last time he seemed far more relaxed and so it depends on the day - his fellows are usually quite fantastic. Dr. Gundulac who was his fellow during my time with him was amazing. thes a new guy now from Sweden or something he's also quite nice.
Truthfully unless the guy is a complete turd - I don't mind if they have a bit of attitude - he's earned it - he's the head of the clinic, a pioneer in his field, and an amazing surgeon... At the top hospital in the country...
Worry not your dad is in good hands. Hugs!!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Lea

[quote]Question: My dad has always been a health freak. Supplements and vitamins are a part of their lifestyle. I can't seem to convince the doc's to allow for a probiotic to be added to his mealplan. He finished his antibiotic a couple of days ago, and I'd like for him to start supplementing again and rebuilding wellness inside out. I am shocked at the resistance to natural health practices from the doc's and dietitian. Is this the common?
[/quote]
Answer YES. In the US, it is very common since no doctor or hospital wants to get sued for malpractice when the National Cancer Institute has a bulletin out saying supplements etc can interfere with the radiation AND WORSE MAY PROTECT THE CANCER CELLS.
NCI: Dietary Supplements and Cancer Treatment: A Risky Mixture
While some studies suggest that probiotics can be helpful when radiation is given to the abdomen, pelvis, etc, there are none showing any good effects for radiation of oral cancer.
Plenty of time to take whatever he wants once treatment is over. Better safe than sorry in this instance IMO
Charm

Last edited by Charm2017; 07-13-2012 11:11 AM. Reason: toned it down

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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