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John of arc #151279 06-26-2012 08:53 AM
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Hi, John -
Let's see, for starters, his energy level improved: he was able start riding his horse again. The increased physical activity helped his brain chemistry and let him feel better emotionally. When he started, I would tack up his horse, he would ride for aabout 20 minutes, and then get off - exhausted. He would rest and I would put up his horse. Basically, he would push himself a bit, and then rest to recover.

His eating slowly improved - we started adding baby cereals to his protein shakes little by little to add something that would stick to his ribs and be sustaining. We also began to add whey powder for extra protein, which I would highly recommend.

Slow but steady wins the race!


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
John of arc #151282 06-26-2012 09:23 AM
Joined: Jan 2009
Posts: 1,844
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
John,

Trust me when I say, you are among people that understand in a way that no one else can. It almost killed me laying in a bed for 2 years being dragged down by massive amounts of opiates, side effects, and my own self pity. I'm thankful for the beautiful souls on these forums that helped me through that time to the other side of it.

Now don't get it twisted, I will never be the person to say that survivorship is easy, I don't shovel bullish!t for a living, but I'll tell you that I enjoy life today more than I ever did before cancer. My advice to you is to keep plugging into the survivors and caregivers of this disease for advice and inspiration, build relationships here to help you until you get your feet back under you. I'm a huge believer in hope, and live by a quote from Nietzche, "He who has a "why" to live can bear with almost any "how"." Find your why John.

My biggest "why" was my family, I have a wife and two young boys that made me straighten up, broaden my shoulders, lower my head and push through this sh!t anyway possible. I used nutrition, exercise, and daily motivations of reading, these forums, music, movies, chemical assistance etc to build up my spirit and keep me from succumbing to the darkness of the situation. When you're ready to do that, remember that it's a choice. The few choices we have on this path really.

My question to you John, is are you going to let this bullish!t beat you or are you going to fight back by making the choices I've described above? I've used these forums to express my feelings of vulnerability, fear, and anger...but also those of triumph, joy, and happiness. Lay it out brother it's what we are here for. When you are ready to fight back to get to the optimum new you, let me know player as I'm here to help with advice on nutrition, exercise, books, movies, and music.

3 years ago today I was on an insane amount of fentanyl (strongest opiate available to humans, roughly 100x stronger than heroin) and had to use a walker to get from my bedroom to my living room down the hall. Tonight I was asked to go down and help train some local amateur mixed martial arts fighters preparing for their upcoming cage fights....on top of all of the other cools sh!t I'm blessed to do, many of my exploits I share on Facebook.

Keep your chin up John, hope is all we have my friend.


Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
John of arc #151286 06-26-2012 11:18 AM
Joined: Jan 2011
Posts: 168
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Jan 2011
Posts: 168
I feel for you so much, so much. I also felt like I was not told how horrific treatment is, how it would bring me to my knees, and how hard recovery would be. Were they protecting me? I don't know. I ended treatment on 3/21/2011 and it took one month before I could talk and two months before I could eat by mouth - even a little - and three before I could make it through the day without pain meds. Just the other day I told a friend that when I was in the middle of treatment I said to myself that I wouldn't put myself through this again if the cancer came back. Of course, now I would because I know that healing happens. It is slow but it happens. YOU WILL HEAL. You will. I promise you. You will get your life back and it will be a deeper life because of all you endured and survived. -Michelle


SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
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