| | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | OP  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi guys well so far so good, I think. My last scan was the end of November and came back clear as did my first post rad scan in August of last year, since then I've had two clear check ups (january, the end of april/early may) and passed my one year post rad..  I have another check up with my RO in July - however I found a tiny - like maybe 1-2mm bubble (that's the only way to describe it) under the skin on my left clavicle - it is solid but very moveable (not attached to the clavicle) its not soft like a lipoma - it feels round and smooth - at first I thought it was a lymphnode but no - lymphnodes are found in the softened hollowed area above the clavicle - I have a clip in my neck from my surgery (very palpable, it's round and smooth and noted on my ct, which is at the middle of my scar) this feels similar except it's really tiny - i cant tell you if it hurts - I'm pretty numb on that side you could whack me with a mallet and I wouldn't flinch. I found it while doing my lymphatic massage and it could have been there forever but I've never noticed it - it's actually the size of this happy face or a bit smaller - any ideas? Regardless I have an appointment with my SO on Wednesday - but because you guys have been through it all I though I'd float it by you... hugs all
Last edited by Cheryld; 06-01-2012 09:24 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Dec 2010 Posts: 291 | Cheryl,
I don't really know. If you would describe it as being the size of a bb which is what it sounds like, I've had something like that which first showed up for me towards the middle of radiation treatment. It did not show up on a ultrasound then, and I was not able to find it again afterwards. I was told it could be something from surgery. Nothing has shown on a CT scan for me either. From what you've said I would say it is probably nothing significant, but for peace of mind it is good to get it checked out.
Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Cheryl - sounds as though you're doing the right thing to have it checked out. Keep us informed, ok? Thinking of you.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | I was doing some reading hoping its a fibroma from rads and surgery,the description is apt. it sounds like it. It will definitely make me feel better to talk to my SO on Wednesday - thanks guys!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2011 Posts: 117 | Cheryl, hope it turns out to be nothing. You are in my prayers for a good outcome. Keep us posted.
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Hi, Cheryl
it could also be something mundane like a sebaceous cyst. Fingers crossed for you!
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | OP "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi there..l well I saw my dr. (so/ent) yesterday and he said its nothing. Based on the location it's highly unlikely it's cancer - he offered to do a ct, but said in his opinion it was nothing - thought it might be where the muscle attached to the tissue in the area - possibly a stitch - (I'd pretty much talked myself down by this point) so I left as I have an appointment in a month with my RO - they rag team me. Then when I got out I though damn maybe I should have pushed for the ct. So I came home and made an appointment with my GP (he's my go to guy for everything because I trust him - and though I'd ask him to arrange the ct - since my last one in Nov was through him and they have a comparison scan. Plus because I can get the scan and results super fast. He felt my bubble and said I was nothing too. So I'm going to have to beleive them! The two drs I do trust agreed. Dr. P thinks it might be a little fatty thing. Regardless both are saying its nothing. I got scoped etc... And got an all clear as well from my ENT. So I'm relieved. my GP said Cheryl.. If I thought it was anything I'd tell you! hugs all thanks for your support... Csncer anxiety is 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Whew - thanks for the good news - I was thinking about you  Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Dec 2010 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Dec 2010 Posts: 62 | Glad to hear that your two top guys think its nothing. One's mind does run amok though, doesn't it? Hugs!
Catherine, SCC floor of mouth DX 2010,unclear margins, PET scan clear, no chemo or rad,biopsy in 9/2010, 2nd excision 10/2010 didn't get all carcinoma in situ; partial gloss & excis. right floor 2/2/2011 margins clear. Part.gloss-10/5/2011 sev dys clean marg. HPV neg. Don't smoke or drink. SCC floor of mouth left side 4/2016. Dysp excis. rt palate 7/2017 Part gloss sev dys lat marg 2/2019 Part gloss free flap rt neck disc 5/2020 Part gloss bilat neck disc 7/2020 33 rad 3 cis.
| | | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2011 Posts: 117 | So glad for you Cheryl....I think that the fear is going to stay with us forever. Maybe it gets better over the years and we don't freak out with every little thing, but since 2 docs say it's A-OK, I'd go with that.
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
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