| | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Would love an update.
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: May 2012 Posts: 6 Member | | OP Member
Joined: May 2012 Posts: 6 | Hi everybody!
Amy- My Mom does have Dr. Jalisi and Dr. Ezzat (plastic surgeon). She really likes Dr. Jalisi. Sorry I haven't updated in awhile. Life is hectic with pregnancy. So my Mom had an MRI and CT Scan done this past week. The MRI showed 2 nodes (one on the left side of her neck and one under the mandible) that looked suspicious. Doctor was not concerned about the one underneath the mandible, and just suspects that the other one could be cancerous. Radiologist thinks there is a greater than 50% chance that it is NOT cancerous. CT Scan was completely clear. The doctor did a biopsy of the lymph node and we will know by Wednesday if it is cancerous or not. Right now she is considered Stage 3, but if biopsy comes back normal she is considered Stage 2. We are praying that everything will come back normal. We were thinking of getting a second opinion, but considering timing and the fact that my Dad is very involved with her care, we are going to stick with BU at this point. My Dad has been asking all around for advice. We are lucky to know so many good doctors. So far the scans have been coming back much better than expected, although we are not in the clear yet. I will update again soon. Hope everyone is doing well. Take Care. | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | So glad her lungs are not involved! Not sure why the are concerned about the nodes, despite the factthat I had none involved according to my ct and MRI my otolaryngologist / so told me up front he was doing a neck disection too. It's pretty standard with tongue cancer. thankfully it was planned as by the time I went into surgery one was involved. Also that one was under my mandible. Hugs and good luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2012 Posts: 114 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2012 Posts: 114 | Oh I'm so thrilled to hear her scans are looking good! I'm also glad to hear she likes Dr. Jalisi, my mom loved him too. She said he was larger than life when he first walked in the room. He is a very talented surgeon, the whole team there is good so I'm glad your mom and dad feel comfortable with her care.
Totally understand life is hectic with your pregnancy and trying to stay on top of your moms situation. But please keep us informed when you can. Also, I am obviously close in proximity to your parents so if there is anything I can do let me know!
Amy CG to mom Janet - diag w/ early SCC 8/11-surg w/ rad neck dissect & graft from arm/thigh 9/11-evid in nodes tx 6 wks rads (5/wk) w/cistplatin (1/wk for 6 wks) began 11/11-wk or 2 break 12/11 due to severe side effects-done 1/12- 3/23/12 mets to liver lung bone-hospice 4/7/12-lost fight 4/22/12
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Thanks for the update. So glad they are happy with the team they have. That makes the battle so much easier.
Good luck in the next couple of months. Just write when you can!!
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Welcome to ocf Katy! Sounds like your mom is in good hands. Praying for good results!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: May 2012 Posts: 6 Member | | OP Member
Joined: May 2012 Posts: 6 | Thank you so much everyone. Haven't updated as I went into pre-term labor at 33 weeks. Luckily, the doctors were able to stop it and all is good. We found out that my Mom's lymph node came back positive for cancer. Luckily they believe it has only spread to that node. She is having about 1/3 of her tongue removed and a selective neck dissection this Thursday. I'm hoping the operation will go smoothly and that she will be feeling better afterwards. I will keep everyone updated when I can. Thank you for all of your support and encouragement.  | | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Oh, my goodness - glad that your labor is continuing normally! Best wishes for you and your mom!
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Good luck with your pregnancy... as for your mom's surgery... you'd be amazed at how quick the recovery can be... Radiation and chemo on the other hand... takes a while! I'll say a prayer for her!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Are they going to do the Rad?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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