| Joined: Dec 2011 Posts: 126 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Dec 2011 Posts: 126 | I am about 4 months post-treatment, and have recently moved back to Atlanta and returned to work (I was undergoing treatment in Louisiana). I am scheduled to have my CT scans every 4 months at MD Anderson, but my doctor recommended I see someone in between my MD Anderson visits (so I would be getting check ups at least every six weeks). I went and saw someone here in Atlanta, and she seemed confused at why I was there, and told me the MD visits were enough, and I did not need to worry about seeing her unless I had a problem. She barely even examined me, then sent me on my way (my appointment lasted less than 10 minutes). I was just wondering how often most of you were seeing a doctor during your first year - is 4x a year enough? Ironically enough my aunt is an Otolaryngologist (she was the one who recommended this doctor in Atlanta), and she was shocked when I told her that the doctor didn't really examine me, and said she would find someone else for me to see. I am not sure if she is just being extra cautious/over protective, or if this is necessary. Any thoughts?
Emily - 24 years old at diagnosis HPV-, no risk factors T2N2b Squamous Cell Carcinoma Left oral tongue, poorly differentiated Hemiglossectamy, reconstruction, partial neck dissection 30 Radiation treatments, weekly chemo (cisplatin) 1/13/12 last day of treatment Diagnosed October 2011
| | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | Emily, I saw my RO and my MO every 3 months the first two years. I also see my ENT, who did my surgery, every 3 months. After the first year and a half or so, I had scans every 6 months. I am now seeing both oncologists every 6 months. My MO said he will not order any more scans unless there is indication of a problem. So far, I am still seeing the ENT every 3 months, and my family doctor every 4 months. I am nearly three years out of treament. My doctors are very thorough when I see them. Hope this answers your question.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Here is a similar thread about how often patients go for check ups and scans after treatment. Scan frequency after tx ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi Emily - she may just be being cautious but she should be - several things - the fact that you're so young is one, the fact that it was poorly differentiated, is another, and the third thing - your 2nb status - makes me think you should listen to your aunt. It definitely won't hurt to go to the des a little more frequently and it might help. hugs! Ps - I see my dr. Every three months as well. The other dr. Is being lackadaisical. Cancer is serious and should be taken seriousky.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Dec 2011 Posts: 126 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Dec 2011 Posts: 126 | Thank you! Yes I think I am going to look for another doctor in town. The one I saw seemed way too dismissive - I would rather err on the side of caution!
Emily - 24 years old at diagnosis HPV-, no risk factors T2N2b Squamous Cell Carcinoma Left oral tongue, poorly differentiated Hemiglossectamy, reconstruction, partial neck dissection 30 Radiation treatments, weekly chemo (cisplatin) 1/13/12 last day of treatment Diagnosed October 2011
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | That sounds like a good plan, Emily. Best wishes for your continued recovery!
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Apr 2011 Posts: 267 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Apr 2011 Posts: 267 | I saw my surgeon every month until this month when I hit the one year post surgery mark. Now I see him every other month. I also see my MO and RO every three months. My exams with the surgeon are pretty short though. 10-15 mintues. He does a check, a scope and then we discuss any concerns I might have. He also does an ultrasound of my neck every other visit. I'm glad you're looking for another doctor. I think your aunt is correct and you should get a good, regular checkup from someone who will take you seriously.
Tracy - 33 at diagnosis SCC right ventral tongue Dx 4/11. T1N2M0 1st resection 5/11. Bilateral neck dissection: 2 pos nodes 2nd resection w/graft 6/11. Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11. 3 month MRI and PET/CT all clear. 6, 9, 12 and 24 month post treatment MRIs all clear. | | |
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