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#149890 05-22-2012 01:39 PM
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emilyp Offline OP
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I am about 4 months post-treatment, and have recently moved back to Atlanta and returned to work (I was undergoing treatment in Louisiana). I am scheduled to have my CT scans every 4 months at MD Anderson, but my doctor recommended I see someone in between my MD Anderson visits (so I would be getting check ups at least every six weeks). I went and saw someone here in Atlanta, and she seemed confused at why I was there, and told me the MD visits were enough, and I did not need to worry about seeing her unless I had a problem. She barely even examined me, then sent me on my way (my appointment lasted less than 10 minutes). I was just wondering how often most of you were seeing a doctor during your first year - is 4x a year enough? Ironically enough my aunt is an Otolaryngologist (she was the one who recommended this doctor in Atlanta), and she was shocked when I told her that the doctor didn't really examine me, and said she would find someone else for me to see. I am not sure if she is just being extra cautious/over protective, or if this is necessary. Any thoughts?


Emily - 24 years old at diagnosis
HPV-, no risk factors
T2N2b Squamous Cell Carcinoma
Left oral tongue, poorly differentiated
Hemiglossectamy, reconstruction, partial neck dissection
30 Radiation treatments, weekly chemo (cisplatin)
1/13/12 last day of treatment
Diagnosed October 2011
Joined: Nov 2009
Posts: 493
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Emily,
I saw my RO and my MO every 3 months the first two years. I also see my ENT, who did my surgery, every 3 months. After the first year and a half or so, I had scans every 6 months. I am now seeing both oncologists every 6 months. My MO said he will not order any more scans unless there is indication of a problem. So far, I am still seeing the ENT every 3 months, and my family doctor every 4 months. I am nearly three years out of treament. My doctors are very thorough when I see them. Hope this answers your question.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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Here is a similar thread about how often patients go for check ups and scans after treatment.

Scan frequency after tx


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Hi Emily - she may just be being cautious but she should be - several things - the fact that you're so young is one, the fact that it was poorly differentiated, is another, and the third thing - your 2nb status - makes me think you should listen to your aunt. It definitely won't hurt to go to the des a little more frequently and it might help. smile hugs! Ps - I see my dr. Every three months as well. The other dr. Is being lackadaisical. Cancer is serious and should be taken seriousky.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Posts: 126
emilyp Offline OP
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Thank you! Yes I think I am going to look for another doctor in town. The one I saw seemed way too dismissive - I would rather err on the side of caution!


Emily - 24 years old at diagnosis
HPV-, no risk factors
T2N2b Squamous Cell Carcinoma
Left oral tongue, poorly differentiated
Hemiglossectamy, reconstruction, partial neck dissection
30 Radiation treatments, weekly chemo (cisplatin)
1/13/12 last day of treatment
Diagnosed October 2011
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
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That sounds like a good plan, Emily. Best wishes for your continued recovery!


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Apr 2011
Posts: 267
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I saw my surgeon every month until this month when I hit the one year post surgery mark. Now I see him every other month. I also see my MO and RO every three months. My exams with the surgeon are pretty short though. 10-15 mintues. He does a check, a scope and then we discuss any concerns I might have. He also does an ultrasound of my neck every other visit. I'm glad you're looking for another doctor. I think your aunt is correct and you should get a good, regular checkup from someone who will take you seriously.


Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.

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