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| | Joined: Sep 2011 Posts: 61 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2011 Posts: 61 | I am 7 months out of radiation and almost 1year post surgery. I have recently been experiencing tongue cramping. It seems to only happen when I yawn and it only lasts a few seconds. Just wondering if anyone else has experienced this. I have read on other forums where people have.
Do not go gentle into that good night. Rage, rage against the dying of the light.
31 @ Dx SCC of tongue right side May 27, 2011, no tobacco, light drink
Partial gloss. and ND June 2011 - 2 jaw nodes positive ("encapsulated")
33 rads ended 10/21/11.
Dx Non small cell lung cancer 05/18/15
| | | | | Joined: Sep 2011 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2011 Posts: 61 | I would also add that this doesn't happen frequently. Some days it doesn't happen at all. But today it happened twice.
Do not go gentle into that good night. Rage, rage against the dying of the light.
31 @ Dx SCC of tongue right side May 27, 2011, no tobacco, light drink
Partial gloss. and ND June 2011 - 2 jaw nodes positive ("encapsulated")
33 rads ended 10/21/11.
Dx Non small cell lung cancer 05/18/15
| | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | I have some weird stuff going on with my tongue occasionally, that somebody described as "football tongue". It kind of swells and cramps, like you said, just for a minute or two, but I can't talk when it does happen, and I can't seem to pinpoint a reason. None of my doctors really know, other than saying it was probably a residual effect of radiation. My ENT thought it sounded almost like a drug allergy, but I'm not on any drug that might cause it.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | Mine doesn't happen often either. Maybe every couple of weeks or so.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Sep 2011 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2011 Posts: 61 | Yeah I think football tongue s an accurate description!
Do not go gentle into that good night. Rage, rage against the dying of the light.
31 @ Dx SCC of tongue right side May 27, 2011, no tobacco, light drink
Partial gloss. and ND June 2011 - 2 jaw nodes positive ("encapsulated")
33 rads ended 10/21/11.
Dx Non small cell lung cancer 05/18/15
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