| | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Eric - Great post with great information! Not just for survivors but for CGs or for anyone that can use a reminder of good health practices and specific ways to start feeling good again! I just sent a copy to my son. (This could be a great PowerPoint Presentation!) Re your paragraph on cortisol and body relaxation techniques, I would have thought that #9 could have been a little higher on the list, tho' - JMO.  Thank you, thank you SO much! I am so glad we have you with us!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Thanks Anne-Marie, I'm glad you enjoyed these thoughts. CRF is something I struggle with and fight to keep on top of. Attitude, nutrition and daily exercise are the only factors I can control when it comes to my health, so for me it's a way of have a little control in this thing we call life
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Eric I so needed to read this, I have the head knowledge but lack in implementing it because I'm so too tired to even try! Lol My drs said I need to start exercising but I think a lot of other various things contribute to my CRF as well. Maybe someday I won't wake up tired! 
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | Thanks Eric, that's useful. Martin falls asleep all the time, but at the wrong times which means that he's not tired at night and watches TV til 2 or 3 am so then tired in the morning. At the moment he look after Alice Rose 1 day a week and 2 mornings and he is struggling. Alice Rose and I are up at 6.30 am (not my choice!) and after her bottle and a nappy change she is full of beans and wants to play. She goes to the bedroom screaming DADADADADA. Martin loves it but beacuse of his chronic fatigue and his erratic sleep patterns he is struggling. Baby Alice Rose can now walk, climb, open things... He can't just put her back in her cot and have a cat nap. Exercise would help but he is "not a gym person" and thinks cycling is bad for you... and running is boring. I don't know what to suggest. I'll have to make him read your post. I think swimming he wouldnt mind.
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Cecelia - Just a thought - Maybe Martin would enjoy running or power walking if he had some favorite music to listen to? The right music at the right tempo might move him along.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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