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| | Joined: Oct 2011 Posts: 8 Member | OP  Member
Joined: Oct 2011 Posts: 8 | Hi Brian,
You and David both helped me tremendously when my friend was diagnosed and began treatments. (I don't know if you remember) This site is the greated tool for accessing first hand knowledge on dealing with this that I have found. Although he has not used it - it has helped me help him be very proactive in his treatment and knowledgeable about issues he had to face. So thank you all for helping by sharing your experiences.
His pretreatment PET scan showed no other spread of the cancer beyong the lymph nodes - everything else was clear.
Your thoughts on them checking for movement of the cancer is kind of what I was thinking also, but I also wondered if the doctor's might be able to see or read the PET differently when they know it is going to light up. He is still really inflamed and healing - he is eating daily but it is still like fire sometimes - which is still normal for this short time out ( at least that is what I have read and have been told.)
I am just trying to prepare him for the false positive results that seem to be likely to show up.
I guess we will wait for Thursday when he gets his results.
Thanks again,
Jim
Jim
Friend of BOT SCC with Lymph node involvement
HPV positive
Started treatment 10/8/11
3 weeks chemo (carboplatin, 5FU & Erbitux)
followed by 40 IMRT with concurrent chemo (Carboplatin)
Last treatment 3/20/12
| | | | | Joined: Oct 2011 Posts: 8 Member | | OP Member
Joined: Oct 2011 Posts: 8 | Just thought I would post a quick update - My friend met with his RO today - his scan came back cancer free. They will scope him in 3 weeks at his next appointment. Couldn't be any better news! Thanks you for all the help.
Jim
Friend of BOT SCC with Lymph node involvement
HPV positive
Started treatment 10/8/11
3 weeks chemo (carboplatin, 5FU & Erbitux)
followed by 40 IMRT with concurrent chemo (Carboplatin)
Last treatment 3/20/12
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | YIPPEEEEEEEEEEEEEEE! WHAT A WONDERFUL POST - CONGRATULATIONS!
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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