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Brian Hill #147573 03-29-2012 04:12 PM
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[quote=Brian Hill]We have been working the the ABC daytime TV show the Revolution

http://beta.abc.go.com/shows/the-revolution

to do a segment on oral cancer and HPV. While they only give a small portion of the show to any given topic, they are airing this segment on the 30th at 2PM on ABC. [/quote]

While it is already the 30th here I would not be able to get the show in Australia, so I am hoping that I can get to hear it later from someone's taping??
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #147574 03-29-2012 05:14 PM
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Lets hope they get it right! They havent involved OCF as much as I would have liked to see.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #147589 03-30-2012 12:14 AM
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Gabriele - if you go to:

http://abc.go.com/watch?cid=10_fep_footer

And scroll down quite a bit, you will see a square for "The Revolution" and you can view full episodes of all the shows. Hopefully it will include today's show on ABC at 2pm. So, it may not be necessary to tape it. Hope it works.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Anne-Marie #147608 03-30-2012 03:19 PM
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This is what I get Anne-Marie shocked
"You appear to be outside the United States or its territories. Due to international rights agreements, we only offer this video to viewers located within the United States and its territories"


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #147609 03-30-2012 03:38 PM
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It's not up quite yet, usually they post that days episode a bit later on in the evening but I've always seen it posted same day.

By the way...my high school crush Toni Braxton is co hosting....I love you Toni...yes those were my tighty whities I threw on stage in 1996! That may have been an overshare...


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #147640 03-31-2012 09:40 AM
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OK, I watched the segment on my iPad, and it was alright, but wish that they had spent more time on it. Also wish that they had given a shout out to OCF. Oh, well, I guess any publicity is better than nothing. I am glad that they did talk about the dentist's role in screening, too.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #147646 03-31-2012 05:18 PM
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I watched the segment, too and it�s good they got out the information they did. However, they rushed through everything so fast, I wondered how the audience could be expected to remember everything or anything. I know that on TV or radio they have to think in �sound bites� (minimum of sound, maximum of sense) but to be able to take in important information or to learn anything, all of the senses need to be involved, or as many as possible. I wish Jill could have been interviewed or at least Christine�s picture shown. Having a real person interviewed with care giving experience would have allowed for a much more effective �teaching� moment and people would be more likely to remember something more than just �oral sex�. It�s unfortunate that OCF was not mentioned.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Anne-Marie #147647 03-31-2012 05:40 PM
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I thoroughly agree, Anne-Marie, I kept thinking that I missed something, and went back and looked at it again. I also wish that there had been some pictures or some interraction with a real live person who is an oral cancer survivor. I was pretty disappointed in it.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #147669 04-01-2012 09:08 AM
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I watched the segment too, and I kept thinking "they are afraid to say the word CANCER". It seemed to me they kept minimizing the cancer risk issue. I do realize that the "C" word frightens people - and as a new show they probably do not want to frighten their viewers. Too bad. It was rushed. Oh well - hopefully someone took note aside from the Choir!!

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
ESikon #147674 04-01-2012 02:41 PM
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Kevin is going to be a part of "The Cure's" summer issue. They interviewed both of us several times and are supposed to be doing a picture in a few weeks for it. I truly hope they get all the medical stuff correct. I would assume they talked to way more than just us, but don't know any details. We didn't get to see the entire article, only our quotes so we could approve.
We are trying to spread the word here in Elmira too. Amazing how many people have no idea about HPV, much less HPV and it's relation to OC.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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