| | Joined: Mar 2012 Posts: 17 Member | OP  Member
Joined: Mar 2012 Posts: 17 | Diagnosed with pt1 pn1 just yesterday looking for some guidance, oh by the way has I figured you become a great speller of medical terms crazy you never stop learning
Diagnosed squamous cell carcinoma surgery 2/24/12,primary tumor pT1 regional lymph node pN1 total number of nodes removed 13 with 1 positive age 53 occasional cigar smoker quit social drinker workout nut.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi there. and welcome... tell us a little about what's going on... have you had your surgery? What are they telling you with regards to radiation and treatment? Hopefully your are recovering well... I noticed your other post saying you'd just had your surgery,,, was it surgery or your biopsy? You definitely get versed in medical terminology when you are diagnosed.
Regardless good luck and welcome... the group is great and full of answers here.. take care.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. Glad you have found this forum for info and support. We will help you get thru everything you are facing. Sorry to be a little slow, not sure what pt1 and pn1 mean. Are you being treated at a cancer center? there are some excellent top notch facilities in Texas.
Looking forward to getting to know you better. Best wishes with everything!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2012 Posts: 17 Member | | OP Member
Joined: Mar 2012 Posts: 17 | Have had surgery. And the results of the 13 lymph nodes taken were 1 positive. I started over a year ago with hitting my tongue dentist thought my two back teeth were possibly causing this because they were collapsing because of a missing tooth next to them. They conducted a biopsy on tissue on the tongue confirmed it was cancer. The next step was first rest and let this large scar heel bit more next week is my next appointment then I will be referred. Lots of questions
Diagnosed squamous cell carcinoma surgery 2/24/12,primary tumor pT1 regional lymph node pN1 total number of nodes removed 13 with 1 positive age 53 occasional cigar smoker quit social drinker workout nut.
| | | | | Joined: Mar 2012 Posts: 17 Member | | OP Member
Joined: Mar 2012 Posts: 17 | Sorry I was butting my tongue typo
Diagnosed squamous cell carcinoma surgery 2/24/12,primary tumor pT1 regional lymph node pN1 total number of nodes removed 13 with 1 positive age 53 occasional cigar smoker quit social drinker workout nut.
| | | | | Joined: Mar 2012 Posts: 17 Member | | OP Member
Joined: Mar 2012 Posts: 17 | Biting my tongue sorry new computer
Diagnosed squamous cell carcinoma surgery 2/24/12,primary tumor pT1 regional lymph node pN1 total number of nodes removed 13 with 1 positive age 53 occasional cigar smoker quit social drinker workout nut.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | If you make a mistake, up to 2 hours after you post something you can edit it. Take a look at the box you wrote your last post, on the bottom right you should see "EDIT" next to the "REPLY" tab. Click on "EDIT" and fix whatever was wrong. Only if you are adding alot of info would you want to write another post. Typos are something that everyone does. We can usually read right thru them so dont stress yourself out.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hi welcome... hope you heal quickly... get your referral as soon as possible. Tongue cancer can move very quickly! good luck and hope everything feels better soon.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2012 Posts: 17 Member | | OP Member
Joined: Mar 2012 Posts: 17 | Yes thank you, will hopefullly get one next week. Starting to feel better though neck is still really stiff doctor really never told us the hole pain thing learning slot about the doctor part not very good bed side manner
Diagnosed squamous cell carcinoma surgery 2/24/12,primary tumor pT1 regional lymph node pN1 total number of nodes removed 13 with 1 positive age 53 occasional cigar smoker quit social drinker workout nut.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | You neck will be stiff long term... If you have rads it may be permanent - just stretch it (when you've healed) massage helps too... Also when you've healed... good luck with the referral - mist drs are forthcoming if asked but frankly people tend not to ask wha the fall out from treatments will be. This is why a little research helps the individual. Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2011 Posts: 130 Likes: 3 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2011 Posts: 130 Likes: 3 | Hello dswavey, If there is one peice of advise I can give you it's to stay very connected to the people here on the OCF. The lovely Cheryld (hi Cheryl) and I basically went through rads together (I think she was 1 day behind me) and although it was harrowing and scary we got through it with some love, help, and supprot from eachother, our loved ones, and the other survivors here on the OCF. Stay close me friend. And...the doctors, as crude as they may be, can save your life and hopefully leave you with little more than a little dry mouth.
Peace.
Will
Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hey Will!! Welcome back! hope yer feeling mucho awesome!
Last edited by Cheryld; 03-16-2012 08:00 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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