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| | Joined: Mar 2011 Posts: 130 Likes: 3 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Mar 2011 Posts: 130 Likes: 3 | Hello dswavey, If there is one peice of advise I can give you it's to stay very connected to the people here on the OCF. The lovely Cheryld (hi Cheryl) and I basically went through rads together (I think she was 1 day behind me) and although it was harrowing and scary we got through it with some love, help, and supprot from eachother, our loved ones, and the other survivors here on the OCF. Stay close me friend. And...the doctors, as crude as they may be, can save your life and hopefully leave you with little more than a little dry mouth.
Peace.
Will
Lump in left side neck discovered Sept 2009
Misdiagnosed & FNA inconclusive
Large lymph node removed Nov. 2010 SCC and HPV16 pos
PET pointed tonsilectomy Feb. 2011
1ml tumor left side tonsil
Rads scheduled March 14th 2011. 2X36 GY's (72)
CarboTaxol once a week X 4 or 5 starting 4/5/11
No PEG
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hey Will!! Welcome back!  hope yer feeling mucho awesome!
Last edited by Cheryld; 03-16-2012 08:00 PM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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