| | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | OP  "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 | Iv got my 6 weekly check up tomorrow, I had my new obturator and it's like massive! Iv been getting used to it but not been that good at checking it's been rubbing etc anyway I seem to have had a cold since I began wearing it and now I have a bit of a cough and my mouth feels a bit sore . I looked in the hole and noticed a Small white spot and now I'm worried it could be something
Guess I'll have to wait till tomorrow I'm having a tends bad temper day and I know it's is I have the dreaded check up !
Bye for now
Jayne xx
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jayne, try to keep yourself busy so your mind stays occupied. It helps to make you not so anxious about your appointment. The white spot could be anything, hopefully its nothing. We all get a bit nervous when it comes check up time. With time you will learn to take these things in stride and not worry so much. I am one of the more calm members about my check ups. Im very strong minded and will distract myself with reading my kindle, watching movies or playing cards. Those little things are enough to make me not think about 'what if' and get upset. The longer you are out from your treatments the easier it will get.
Best wishes for a good check up!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Please try not to worry the sore teeth may actually be from the new orburator as you have said it's large it may be putting pressure on the whole area (braces make your teeth feel sore too for the same reason!) And also if it's been rubbing hat could explain the sore spot. good luck! You'll pass with flying colors!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | | OP "OCF across the pond" Senior Member (100+ posts)
Joined: Apr 2011 Posts: 131 | Thanks guys! Doc said it all looks fine next check up 8 weeks instead of the usual 4 !!!!! Hooray! No surgery for at least a year so if anything does pop up he can see it and deal with it straight away. Christine I will try your tips for keeping my mind off but I am a worrier and will always find it difficult. If anything this is always a reminder to me to live and love everyday!
Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator
Age 45
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Congrats on the good check up! Im so glad your doc reassured you. It must have been a good one for you to advance to every 8 weeks.
We all worry when it comes that time. Its very difficult to change a life long habit. I was a single mom raising my children without anyone's help so I was a planner, I always worried about everything. But I have learned how to cope with it after wasting so much time being upset.
Worry will steal your time from you. It will make you immobile where all you can do is sit around and focus on "what if". That wont change a darn thing. It took me until my 3rd round to overcome my fears and worries. On my low days, I would force myself to go out and do things with my family. It just hit me one day that if I wouldnt get thru it that I had wasted so much of my time. I decided that I was not going to be remembered as one who sat around thinking "what if". I was going to get out there and live life to the best of my abilities.
I hope you will one day be able to move past worrying. It takes lots of practice.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yeah!,,,
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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