| | Joined: Jun 2011 Posts: 147 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jun 2011 Posts: 147 | Hi all,
Don't know if any of you have tried this but my husband has found some relief with Adolph's Meat Tenderizer. Sounds nuts but it breaks up the protein that produces the mucus. Was recommended by our radiation doc in a handout. He puts a few shakes in water, swishes and gargles. It is really helping. He reduced his spitting by 50%. Try it if you dare. Your tongue will be very tender (hahahahaha)
Seriously he sees a difference. Get the unflavored.
Ellen
caregiver for husband
diagnosed with oral cancer May 2011 after 6 mo
node lft side and several in jaw involved
Base of Tongue Stage IVA
7 weeks radiation
Cisplatin-3 chemos (beginning,middle,end) IntraV administration
| | | | | Joined: Jun 2011 Posts: 188 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2011 Posts: 188 | Ellen this is really timely, thank you!
Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
| | | | | Joined: Jul 2011 Posts: 131 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jul 2011 Posts: 131 |
Dx: 3/11 Stage III glottic laryngeal SCC HPV 16+ Tx Start: 7/18/11 chemoradiation 7wks - Tomotherapy IMRT x 34 / Cisplatin x 7 Tx End:9/1/11]-[as of 1/20/12 - ALL CLEAR!]
| | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | this is one of the side effects that really frustrates Alex and 12 months out of treatment, he has "foam" that interferes with his speech. It would be wonderful if this were the answer!
So to my dumb questions: Does it have to be that brand? And if so, what is in it that makes it work? Alex and I are in Australia and I don't know if we have Adolph. Ellen, any chance of asking the doctor which of the ingredients make this work and is it common to all meat tenderisers?
Karen
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | | Joined: Nov 2011 Posts: 53 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2011 Posts: 53 | Soooooooooooooooo going to try this! Thank you!
Debbie, caregiver to Pat my loving husband of 32 years. T1
N2a M0 squamous cell carcinoma of the left base of tongue. Started on concurrent cisplatin and radiation, first
cycle was 09/26/2011, 35 rad, 2 chemo. Last Rad 11-11-11 at 1!!!!
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Ya know, I'm gonna see if Ron will try this, he always has an old rag or paper towel with him to wipe when he ummm drools. He hates it, I'm gonna tell him to try this today and see how it goes for him.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | I know I risk being predictable, but don't forget my favourite tool - the Water Pik. That thing can clear out a lot of mucous in record time. Just bend over the sink and try not to look!
Good Luck.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Nov 2011 Posts: 53 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2011 Posts: 53 | IT WORKS!!!!!!!!!!! Thank you so much Ellen! If you have a cure for evening break out pain that meds don't help you will continue to be on my hero list. Well you are anyway, this tip has made a huge difference! When we are in the car it even helps to take sips of the mixture.
Debbie, caregiver to Pat my loving husband of 32 years. T1
N2a M0 squamous cell carcinoma of the left base of tongue. Started on concurrent cisplatin and radiation, first
cycle was 09/26/2011, 35 rad, 2 chemo. Last Rad 11-11-11 at 1!!!!
| | | | | Joined: Jun 2011 Posts: 147 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2011 Posts: 147 | Wish I had a cure for the break out pain. The only thing that worked for my hubby is to come and get me so that I could massage his temples. I learned it from my massage therapist. She said that there are receptors there that align with the nerves near the SCC. I massage his temples and then also his forehead very gently. Make small gentle circles toward the chin. Worked for us.
caregiver for husband
diagnosed with oral cancer May 2011 after 6 mo
node lft side and several in jaw involved
Base of Tongue Stage IVA
7 weeks radiation
Cisplatin-3 chemos (beginning,middle,end) IntraV administration
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