#13959 03-18-2003 08:45 AM | Joined: Mar 2003 Posts: 2 Member | OP Member Joined: Mar 2003 Posts: 2 | Hello, allow me to introduce myself. I am zandra baker and having a hard time dealing with my disfigurement. I have scars all over my face due to an acid spill. I would like to discuss how the people here are dealing with their problems.
Hello, im new to this board and having a difficult time dealing with my disfigurement. Would like to talk to others about their disfigurments.
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#13960 03-19-2003 04:09 AM | Joined: Jun 2002 Posts: 194 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jun 2002 Posts: 194 | Hi, I would have to say I am disfigured. I had cancer on the floor of my mouth and it had went into the jaw bone. I have been having reconstruction surgery for the last 2 years to try and make my face look more normal. It is very slow. I am a 57 year old woman who is very alert to her personal appearance. It has been a long hard road. The worse part is some people seem to think if you look odd you must be a little slow to go with it. Very frustrating! Everytime I get all dressed up and go out, I forget it myself and then I will notice someone looking at me odd and it hurts. I will say this most people will look and not even blink an eye. I call it an IQ test and they are the ones who score gifted.When I feel sorry for myself I think of the people I know who have had to deal with birth defects that have been dealing with this all their lives, They seem to have found more important things to help give joy and hope to their lives without looking normal. I am not sure if our road is harder or not, looking normal is something we just took for granted. You are not alone out there.
gnelson, StageIV, cancer free since Nov.9,2000
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#13961 03-19-2003 05:12 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | There have been several posts here that have discussed this in varying degrees, but perhaps you might look at this thread from a year ago.. http://www.oralcancerfoundation.org/cgi-bin/ultimatebb.cgi?ubb=get_topic;f=1;t=000007
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#13962 03-19-2003 08:14 AM | Joined: Mar 2003 Posts: 2 Member | OP Member Joined: Mar 2003 Posts: 2 | Hi, i want to thank you both for your replys. It means a lot to me. Least i know i'm not alone. Trouble is, i never seem to run into anyone that looks as bad as me, maybe thats being selfish, i dont know. I just want someone to relate to. It can get very lonely and frustrating at times. Anyway, thanks again for your kind words.
Hello, im new to this board and having a difficult time dealing with my disfigurement. Would like to talk to others about their disfigurments.
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