| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Magic Mouthwash is a combo of several ingedients. Mine was benedryl, malox and lidocaine. There are several different variations of MM. My pharmacist would mix mine according to the prescription. I wasnt aware it came pre-bottled by any individual manufacturer.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Suzanne, although Will made mention of Fentanyl you didn't bring it up. I found that in the late stages of my RT even the Oxy I was taking didn't do the trick, so my doc prescribed a Fentanyl patch concurrently. You may have explored this but if not I recommend it. Hang in there! Things are going to get better.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Thank you all....my pain is finally gone. It took a while. Eric...you had me cracking up that you liked the liquid too much!! LOL....we have to have something to enjoy right?!
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | Hey Suzanne, Steve had the fetanyl patch and liquid oxycodone for his pain. The oxycodone worked well for him. I actually tipped an unopened bottle of it and magic mouthwash down the sink today. Both out of date so no good for anyone (although maybe it would have worked better lol). A strange moment in my day, to be getting rid of all of his pain killers. You'd wonder how tipping drugs out could be on one hand, very emotional and on the other hand, liberating. Haven't used them for nearly 2 years now yet still we have them. This move we are making will be closing alot of doors hopefully Glad to read you are not in pain now. Give that beautiful little man a cuddle for me xx P.S. If you need something to make you smile just think of my 2 monster dogs. They are flying to far north queensland next week. I hate to think what bedlum they will cause and am living in dread that they will escape and there will be reports of 2 german shepherds running down the runway of brisbane airport  I'm not sedating them but think I might have to sedate myself so I can get through the day lol.
Last edited by WendyG; 07-19-2011 05:00 AM.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I remember when I crushed all of my pain meds...that was when I went a little over a year with no surgery. It is such a great feeling!!!! I'm happy for you and Steve:)
lol...you crack me up. I'm sure you will all be fine. Is the house you are moving from the house where Steve went through his treatment? If that's the case, that will be nice. Either way....being in a new environment does wonders though. I'm so happy for both of you...I wish you and your dogs luck!!
Suzanne
xoxo
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | that liquid oxcodone is sooo damn hard to find for Ron. CVS pharm bout half an hour from where we live are the only ones that have it when we have one of them pharm 5 mins up the street from us north and the other 7 mins south but nooo they don't have it. AND try to call the pharm and see if they have it in stock. they can't tell you. WHAT? OK so we drive all over BFE to look for it? I think she was the one I talked to the other day who told me they had it. Ron has no energy to drive all around looking for it nor can he call so I had to, put the pharmacist on the phone and I explained OUR circumstances and he was very pleasant and told me yes they had it and how much it would be if insurance didn't cover and if they didn't and he had to pay out of pocket he may have a discount for him. He remembers Ron from the one he filled when he got out of the hospital. What do they think we are drug dealers going to break in? I was reading right off the prescription and he was a customer already and had it filled once before. I hate attitudes. OK thanks for letting me get that off my chest. lol So he was without this script since the weekend cuz he couldn't refill til Monday. Boy has he been a SOB to me all weekend, it was the pain he has been in, but still...he was crushing his old percs he had but it wasn't strong enough but don't take it out on me.
Last edited by ChristineB; 07-19-2011 04:02 PM.
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jul 2011 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2011 Posts: 33 | Magic Mouthwash is nasty stuff, but it works. It's strange that no Rx instructions (other than dosage) comes with it. My pharmacist also has to mix it up. He calls it "Mystery Mouthwash."
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