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Joined: Jun 2011
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thanks christine, yes I wish medicare was an option as well...i DO know that he makes too much for medicaid, that is what they have been pushing for him to fill out but they agree he makes too much and I gave them a low ballpark figure....so are u thinking there is a no copay discount? they have not said anything about that..will have to look into...he has a post treatment PET SCAN july 25 so we are hoping for some answers there such as prognosis, etc..since we have not gotten any of that..very frustrating, they just say take one day at a time...and the encologist told the nurse he needs to be in a nursing home, he has not mentioned HOSPICE but I do know this dr is very agressive and usually calls hospice the week of someone dying.........we do not want to wait that long.........


FIL DX JAN 29, 2011
stage 4 Squamous cell carcinoma
inoperable due to his overall health.
started treatment: March 2011.
feeding tube and TRACH
finished 39 radiations and weekly chemos JUNE..
June- 3 weeks in hospital for pneumonia
July-pet scan showed slightly better
OCT- hospice care, cancer all thru body


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POST OP PET SCAN in one week...we desperatly need this scan as we do not know what direction to turn too..


he used up all 60 days of his nursing care a few months ago while going thru treatment..he was released from hospital yesterday after 2 1/2 weeks...he went in he has PNEUMONIA and now has MRSA...


AS for the cancer....we was told from start he is INCURABLE but hopefully treatable...he weighs about 110 pounds, feeding tube and TRACH..he has been on tough cookie to say the least....


well the hospital was ready to discharge him and he literally has nowhere to go, he requires 24 care at this time



he went to a nursing home yesterday and we literally gave them all the $ he had $1800 to pay for 11 days of care....once we get the pet scan we will get "all our answers" as the encologist says..whether to continue Erbitux or not.....
Nursing home is trying their best to wqork w us for now until we get some answers of his cancer


MEDICARE----------I just cannot believe that he worked 32 yrs many times 7 days a week at a factory and now he has to wait 24 months for MEDICARE? he just turned 59 he was approved in a day for SS disabilty (they backdated it to JANUARY 2011) when he was diagnosed..........

but now he has to wait 24 months that he probably does not have? so in 11 days he literally will have nowhere to go and it makes me sick..I wish the compassion allowance would be for medicare as well because that would give him another 100 days of care.....are there any other options anyone can think of? Social worker at hospital just says MEDICAID but he does get a lot of $ each month.....2200 (before tax/insurance) for pension and 2300 SSD...and we are afraid he would be denied MEDICAID because looking back at his records. he would leave 400 in the bank for bills and take 1000 out each month and live on that and who knows what he did w that $ and people said MEDICAID will deny him if there is no receipt of what he did with his money?


really confused


FIL DX JAN 29, 2011
stage 4 Squamous cell carcinoma
inoperable due to his overall health.
started treatment: March 2011.
feeding tube and TRACH
finished 39 radiations and weekly chemos JUNE..
June- 3 weeks in hospital for pneumonia
July-pet scan showed slightly better
OCT- hospice care, cancer all thru body


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Immediately contact your local newspaper(s) and radio and TV stations. Tell them all the same story and tell no one that you have spoken to anyone else. Maybe something will come out of that.

What happens in 11 days if no one comes to the nursing home to pick him up? Will they just place him outside? Doubt it.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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wow crazy stuff! I got Ron on meidicaid and SSI or SSD...D I think the first week he was diagnosed with Non Hodgkins Lymphoma. I went down to SS myself personally. But he didn't bring in as much as your father does and he was working but they gave us a letter stating he has been released of his duties at work and when he is able to come back to work he can. He never has been able to since Dec 07. keep fighting and try for Medicaid. He does get quite a bit a month. Good Luck!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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can I ask in shoret how medicaid works? they said if qualified he would keep about $20 a month and the rest goes to the nursing home?


FIL DX JAN 29, 2011
stage 4 Squamous cell carcinoma
inoperable due to his overall health.
started treatment: March 2011.
feeding tube and TRACH
finished 39 radiations and weekly chemos JUNE..
June- 3 weeks in hospital for pneumonia
July-pet scan showed slightly better
OCT- hospice care, cancer all thru body


Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
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I wish I could help but I'm a canuck! But wanted to with you luck!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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thanks cheryl smile

Last edited by marisakay; 07-14-2011 09:14 PM.

FIL DX JAN 29, 2011
stage 4 Squamous cell carcinoma
inoperable due to his overall health.
started treatment: March 2011.
feeding tube and TRACH
finished 39 radiations and weekly chemos JUNE..
June- 3 weeks in hospital for pneumonia
July-pet scan showed slightly better
OCT- hospice care, cancer all thru body


Joined: Apr 2011
Posts: 267
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Posts: 267
Can you make an appointment with the social worker at the nursing home to go over options? He or she should be familiar with medicaid and can hopefully walk you through the process. That's what they are there for. I really hope they are able to get you the information you need to help your FIL. I'm so sorry that you have this stress to deal with on top of everything else that is going on.


Tracy - 33 at diagnosis
SCC right ventral tongue Dx 4/11.
T1N2M0
1st resection 5/11.
Bilateral neck dissection: 2 pos nodes
2nd resection w/graft 6/11.
Erbitux x 11 completed 9/11. IMRT x 30 completed 8/11.
3 month MRI and PET/CT all clear.
6, 9, 12 and 24 month post treatment MRIs all clear.
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Excellent advice Tracy - the social worker is the perfect person to help through the medicaid application process. If he qualifies, and they can tell you right away if he does or doesn't, then he will be considered "medicaid pending" and can stay in the nursing home on the pending status.
Because of his income - his contribution to cover a portion of his care in the nursing home will likely be large. You're in a tough spot here but the social worker can help you get through this!
Best of luck - hope you can figure this financial piece out so that you can focus on the really important stuff - family!


Jennifer (39)
02/10 SCCa Tongue & Base, HPV-
03/10 Partial Glossectomy & ND 11/10 Revision due to additional nodes 12/20-2/2/11 IMRT & concommitant chemo 2/11 PEG in 3/11 PEG out
Back at work and feeling good 03/24/11!
12/20/11 - 9 month f/u PET/CT - all clear!
Joined: Jul 2010
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I don't know "how" it works, I just applied for him and since he had no income or pension after his last paycheck in Dec he was on it in a month, cuz Thank God he was in January on the 14th he ended up in the hospital and on the 23rd of January he was in intensive care for 2 weeks than the nursing home in late Feb or early March can't remember exactly right now but all was paid for by Medicaid and he still is on it as well as Medicare now too. Our caseworker gets his info update when they need it and he gets put on it again. He only gets a whole 16 bux for food but he don't eat much anyway and that's because of the SSD check he gets monthly. He has no worthy possesions at all. All he owns is an old Cadi 95, that he actually signed over to me IF something happened to him during surgery, which didn't happen so now who knows what he's gonna do. Can't get the damn thing to pass an "E" Check here in OH we have to do, runs great though! Big ol 2 door El Dorado, he actually gave it to my youngest when she turned 16 and signed it over to me, than after she got another car,his cousin passed and we got her Neon I think 98 so I signed it back to him lol and we still have that Neon but she has another car her father gave her his 2003 Toyota Camry ya she's the baby can you tell? lol So you have to have NOTHING to get it more or less. Good luck!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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