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| Joined: Mar 2010 Posts: 1 Member | OP Member Joined: Mar 2010 Posts: 1 | I am so lucky and thankful to say "almost 10 years out" I had SCC of my left tonsil, 3 positive lymph nodes and 6 weeks of radiation. I Still need a water bottle in my hand most of the time and I bolus most foods I eat with warm liquids. I eat just about anything I want except spicy foods and alcohol. I do drink an occasional guinness, as that doesnt seem to burn. I recently had a injury at work where I snapped my neck backwards and since have had pain in my jaws both sides. Also the nerves seem to be on fire in my neck and shoulder more than ever before. My ENT has recommended I get baseline MRI of my jaw bones and nerves as I age.I will be 60. Anyone else having these problems as we survivors age? | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Oct 2006 Posts: 383 | Neuropathy seems to be spreading and getting worse (But I was told the alternative (Meds) was just as bad side effect wise)! Still have a bad case of Lock Jaw but it hasn't seemed to be getting worse. I have expanded my diet a lot in the last 4 years (Thank Goodness) and I do seem to have some "Moments" with sharp pains in my mouth/neck every now and then. Overall, like you, I'm thankful, every day!!!!! Congrats on 10 Years. Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yes congratulations - I am only a few weeks out from rads so I can't offer a comparison, but just wanted to say congrats!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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